Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 01-29-2007, 11:32 AM #1
buckwheat
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buckwheat
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Hi,
I am sorry you have RSD but it's great to meet you. I want to welcome you here. Everyone is kind and caring. Hugs, Roz
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Old 01-29-2007, 01:35 PM #2
daylilyfan daylilyfan is offline
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daylilyfan daylilyfan is offline
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Default welcome!

Have you tried Topamax (or is it topomax? I can never remember...) anyway, it is topiramate... It helps my pain-- plus I have not had one migraine since I started taking it. It is used as a medication for migraine prevention I believe.

I cannot take neurontin or lyrica. Topamax works better for me than either of those did when I was trying them. I would hate to live in my body if it was not for this medication!

You have to work up slowly on it, and sometimes have to be on quite a bit to get relief. I fluctuate between 150 and 250 a day depending on how bad I am.. have been as high as 300, but my limbs were getting tingles that were quite distracting at that rate.

welcome again to the forum.

Jules
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