Hi all! Do any of you wear a medic alert bracelet for RSD? It seems to me like this might be a good idea since many of us take such high dosages of pain meds. If so, where do you find these and have any of the docs recommended this? Thanks, Lisa

I think it is a great idea to have one on all the time if possible. Here is a great website for incredible braclets. They are not the standard ones at all. Cant tell they are medical bracelets except for the medical sign on it. They also have a lot of other stuff for medical information. hope it helps.
www.laurenshope.com

I do were a medical braclette. I have a SCS implant and also asthma with the RSD. I was afraid that if at any time something were to happen and noone was with me to tell the docs, then they could see what my problems were and then locate my med card in my purse. I got mine at Walgreens for a little over 10 dollars and it is engraved for me personally. Hope this helps.
Angela

Yes i wear one as also have SCS implant. I wear it 24/7 never take it off-Carol

Now why haven't I in the world gotten one? Maybe it's the clicking on the piano or probably just because my stupid medication kicked in and I took dosages instead of one?

With people like us who have additional hardware such as pumps, media-ports, taking huge dosages of blood thinners plus that clot busters inside that main vein leading into the lungs is more than enough good reasons to get one so I guess I'd better add that to my list. I'm so glad you guys have your brains on straight because I'm clearly out of alignment. Bob.

I dont have a medical alert bracelet. But, I do have a calendar notebook that I keep in my purse. I added some little pockets that I put my medical info in the front of the book. My friend that is a nurse helped me organize it. Page 1 says *ALERT* RIGHT SIDE OF BODY is extremely sensitive to touch!! DO NOT USE FOR: BP's, pulse ox, axillary temps, sticks (IV's or blood draws, etc.) Page 2 has all my diagnosis & blood type. Page 3 has my demographic info & medication list. Page 4 has my doctors contact info & emergency contacts. The book has lots of space for me to write down what time I take each med. It's small enough to fit in my purse so if I take a medd while not home I can write it down. I told my close friends & family that when I have to go to the ER or a doc appt. to make sure I have the book. I had a book like this last year that I got slack about & quit using. But, when I used to go to the ER....nurses & docs were very appreciative that I had it I think I would receive better care.

I think this is brilliant, as I cannot get ER's and hospitals to stop taking blood and inserting IV's into my elbows and on the hard underside of my arms. They just will not listen. Last time, I had to threaten to take it out myself because my arm was turning cold and purple. They don't get it. My only hesitation is that so few medical people know anything about RSD, I'm not sure how the bracelet will help. Dr.'s inserted an IV on the hard underside of my arm when I was unconscious, even though it is all over my chart, and there was even a note above my bed, saying NOT to do this. When I woke up and saw it, I said, you guys aren't supposed to do that. Response? "Yeah, we had a really hard time getting it in there, and it infiltrated right away, so we couldn't use it." I want to kill these morons sometimes.

I wear a bracelet also..all of the time! Actually two..one is a pretty gold bracelet which I had engraved with "RSD/CRPS" SCS IMPLANT..the other on the same wrist is an orange RSD awareness bracelet which I ordered from the RSD web.. If ever we are unconcious or not able to speak it is important we do not receive heart paddles and such...

Hugz, kathy

as a nurse and a RSD pt with a SCS I SHOULD wear an ID but have never found any I like but this site has some that I think I would wear like I need to.
Thanks

Pooh ac..Love that one!!

I used a bracelet that is a regular bracelet from my jewelry box..It has a pretty gold band and a flat side in which I had engraved at our jeweler..then I had the jeweler clip the medic alert pendent on the band.. of course, along with the RSD orange alert bracelet..

Have a slendid night...

Kathy