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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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![]() Recently, I purchased 5 RSD Awareness bracelets for me and my family to wear. The funds($10.00) go to RSD awareness. I purchased the bracelet for myself so that in case of an emergency, and I wasn't able to communicate,medical professionals would have a clue...RSD Awareness. I carry a list of medications, along with DianeA's wonderful contribution site concerning hospital protocol,(http://www.rsds.org/4/resources/pdf/...l_protocol.pdf), in my purse. My husband has a copy,also. Do any of you wear a medical alert bracelet? ![]() Dew
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. Last edited by Dew58; 04-24-2009 at 06:49 PM. |
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In Remembrance
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Dew!
More info needed for my brain challenged self. (and maybe more of us). Where do we get these? Can we have them in Gold? With Diamonds? Or Ruby/Saphirres? (Oh, sorry, thinkin' I was still married)..... Hah! Seriously, It's a great idea. And, to carry a card that contains your prescriptions! Imagine, going into the emergency room, unconscious, and you cannot tell them what medications you take daily? What a nightmare! They'd be treating "symptoms" that are only "withdrawal" from our "normal" cocktail of meds! This, is Important! Thanks, Dew! Pete asb |
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"Thanks for this!" says: | Dew58 (04-24-2009) |
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i also carry the med cards with alleriges and current meds. if i hadnt when i had to hae my appendix out in dec and was basicly so sick i couldnt think .. it would of been horrible.. i wasnt at my hospital at different and they had no clue who i was..
i havent done med bracelt becuse i cant stand to wear anything like that i dont even wear my wedding ring because it hurts so bad and my finger swells like a pig. and turns blue i dont wear any jewlery at all just my wonderful smile LOL carrie
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hope this finds all in less pain . rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,, please check out our website to help bring awareness to RSD! . |
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"Thanks for this!" says: | Dew58 (04-24-2009) |
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i havent done med bracelt becuse i cant stand to wear anything like that
i dont even wear my wedding ring because it hurts so bad and my finger swells like a pig. and turns blue i dont wear any jewlery at all just my wonderful smile LOL carrie[/QUOTE] Carrie, I know longer wear my wedding rings or other jewelry, due to the swelling. The silicone bracelet is stretchable, and I can't even feel it on my skin. ![]()
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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#5 | |||
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I hope I am not breaking any rules by posting this addy.
If so, I will understand if you have to remove it. I don't even feel the bracelet on my wrist ![]() Email me and I will send you the site to order the RSD Awareness bracelets (adult and child sz.): http://www.rsdawareness.com/adultbracelets.htm ![]() Dew Quote:
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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#6 | ||
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Junior Member
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Wonderful idea!!!
I just made an idex card w/ my meds and where my RSD is for myself. Sarah |
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"Thanks for this!" says: | Dew58 (04-24-2009) |
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Junior Member
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my husband just brought that up to me the other day that he wanted me to get a medical braclet thank you for sharing that information, just bought one
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"Thanks for this!" says: | Dew58 (04-24-2009) |
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#8 | |||
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I have a laminated card the size of a business card. It has a logo on it of a person in a wheelchair, it's red and stands out so that they know they have to be careful and that I have a disabilty. The card mentions "CRPS", and has a list of my medication. I might have my dad make another one that additionally states: careful, "late diagnosis" - almost 3 years into CRPS.
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All the best, Marleen ===================== Work related (car) accident September 21, 1995, consequences: - chondromalacia patellae both knees - RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008 |
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"Thanks for this!" says: | Dew58 (04-24-2009) |
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#9 | ||
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Hello,
The bracelet is a good idea. I've seen the one you are talking about Dew. One of my doctors has encouraged me to get it. Of all the things I have accepted and learned to handle with RSD and my life. I feel like it's a lable I'm not ready to wear. I know it can make a differenc if I go to the hospital for an emergency. I keep a card of my meds. I also keep track via my computer the meds I have tried and the dosage and why I no longer take them. That way should I have to see a new doctor I can have that info. as well. I also keep a record of the doctors I have seen for my RSD. Like all of you the list is long the good thing is I haven't had to add anyone in over 3 years. Take care, Sherrie |
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"Thanks for this!" says: | Dew58 (04-24-2009) |
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![]() I understand,Sherrie. I am not pushing anyone to wear an RSD bracelet, I just wear one, and was curious if others on NT(RSD/CRPS) wore one,too. I am not affiliated with the site that I posted, other than that I purchased the bracelets from the site . You are loved..and wearing a bracelet, or not...will change that fact ![]() Dew.
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. A Positive Attitude Will Assist Me Toward An Active Life, Once Again . WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009. |
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"Thanks for this!" says: | SBOWLING (04-24-2009) |
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