Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 05-23-2010, 12:23 PM #1
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i already have my work donating a few rooms for the bands and the founders of the org... but if you guys needed a room somewhere local i can see if they'd give me more, or i can ask some other hotels in the area to donate rooms. i'd just need to know what dates as soon as you guys would know.
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Old 05-24-2010, 10:50 AM #2
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Andrea,
just sent you a PM...I am so willing to help you out with the raffles, silent auction with merchandise from my own store. Tell me how I can help.



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i already have my work donating a few rooms for the bands and the founders of the org... but if you guys needed a room somewhere local i can see if they'd give me more, or i can ask some other hotels in the area to donate rooms. i'd just need to know what dates as soon as you guys would know.
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Old 05-26-2010, 10:16 AM #3
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I can make it to the event... barring any flare ups of course.. But then again we are all on the same page!!! That would be awesome if we picked a resturant the night before and got dinner or something to meet in person.
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Old 05-26-2010, 11:28 AM #4
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This sounds like a great idea!! Unfortunately, I refuse to take pictures of myself now that I have RSD. I'm too embarrassed of how I look now. Good luck with this & thanks for getting the word out on RSD & all your hard work!!!
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Old 05-26-2010, 02:18 PM #5
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You can send a pic pre-rsd!

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This sounds like a great idea!! Unfortunately, I refuse to take pictures of myself now that I have RSD. I'm too embarrassed of how I look now. Good luck with this & thanks for getting the word out on RSD & all your hard work!!!
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Old 05-27-2010, 01:06 AM #6
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Andrea,
Meeting before the show at the Catalyst sounds the least complicated and would probably work out best...even if we have to pack our own din-din...
I am in a terrible flare, I think the worst I've had..and it simply can't get worse and furthermore has to be gone and banished by mid-August...I am so looking forward to this..
Thanks for all you do!
hope4thebest
xoxox
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Old 05-26-2010, 02:19 PM #7
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hannah~ that would be awesome to do! I was also gonna see if i can get a local pizza place to donate food for the bands/staff that's helping with the event... i could see if they'll just through in some extra and we could all meet before the show. but either way it'd be awesome!
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I can make it to the event... barring any flare ups of course.. But then again we are all on the same page!!! That would be awesome if we picked a resturant the night before and got dinner or something to meet in person.
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