Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-26-2010, 11:02 AM #1
firegirl firegirl is offline
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Join Date: Nov 2008
Posts: 125
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firegirl firegirl is offline
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Join Date: Nov 2008
Posts: 125
15 yr Member
Default Horrible flare...dont know what else to do....

I have been feeling horrible (worse than usual), for about 3 weeks now. I am stuck in the wheelchair and cant leave the house. I have RSD in entire right arm, hand, shoulder, and right foot/ankle, stomach, & heart. Sometimes I am able to walk small distances when not i a flare. My doctor temporarily doubled my Oxycodone 30mg to 60 mg 3 times a day....also take Oxycontin 30mg 2x day, Xanax 2mg x3 day, Cymbalta 30mg, Seroquel 600mg, Lamictal 100mg, Vistaril 100mg, Soma 350mg, Treximet, Compazine 10mg, Phenergan, Marinol 40mg a day, Zofran 8mg Dilaudid 4 to 8mg. I've tried all the blocks, SCS, pain pumps, PT, OT, aquatics therapy, chiropractor, Dynatron STS (moved to TX for 5 months to try this), HBOT, and I'm sure more that I can't remember. I've been taking it very easy, but trying to move around what little bit I can. Also tried epsom salt baths. The pain is absolutely unbarable. My doc wanted to hospitalize me for 3 days to get the pain under control with IV meds. He couldnt find a department that would hospitalize me for pain control. So, I went to ER couple of days ago to just get temporary relief w/ IM dilaudid & Ativan. My doc wanted me to get the ER doc to give me a shot of Prednisone & he called me in a script for Prednisone. The ER doc disagreed with the Prednisone, so I didn't fill it. He told me to only take the oral Dilaudid when thing get real bad. I just feel like I am om way too many meds, but I need them all, DON'T KNOW WHAT TO DO....PLEASE HELP!!! I have tried ALOT of other meds with no luck & also have horrible problems with nausea & vomitting. I am also bipolar, and have problems with anxiety and migraines. Thanks everyone...any ideas would be appreciated!!!

Last edited by firegirl; 05-26-2010 at 11:24 AM. Reason: add things i forgot to say...
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