Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 05-27-2010, 07:45 PM #10
firegirl firegirl is offline
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Join Date: Nov 2008
Posts: 125
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firegirl firegirl is offline
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Join Date: Nov 2008
Posts: 125
15 yr Member
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Sorry if my replies are short...i'm still in a bad flare, but wanted to answer your questions.


gatorsmomma, lisa in ohio, dreambeliever128, hope4thebest- Thanks for the kind words!!!!

keep smilin- thanks! i also try to enjoy the little things in life...we have to!!!

olecyn- thanks! I try to move as much as I can, no matter how bad it hurts.

bobinjeffmo- The pump that i had for a few months had something that i cant think of the name of right now in it...i know it had numbing properties & was not morphine.......i also get embarrased when i'm out in public between the way i look in or out of the chair...i hate the stares

loretta-thanks! i've had rsd for about 3 and half years...the closest support group in about 3 hours away.....with hbot i only dove 3 times...it killed my ears & made my pain much worse......i have also tried meditation, visualization, biofeedback, music, & desensitization...........sorry to hear about your parents!!!!! hat is aweful!!..........have tried pain therapy & talking to a therapist 2x a week.......also been inpatient for the depression part of bioplar 6 differrent times..........i also pass out from the pain........as far as heart problems go i get very irregular heart beats that make mizzy & pass out sometimes............i just moved too...i have moved 4 times in just over 6 months after breaking up with my boyfriend of 12 years & moving in with my parents who are always moving......i wake up alot at night in pain....thanks again for all the advice


Thanks again everyone!!! You are all so sweet!!!!!!!!
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loretta (05-29-2010)
 


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