Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 06-01-2010, 01:03 AM #10
loretta loretta is offline
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Join Date: Feb 2007
Posts: 1,090
15 yr Member
loretta loretta is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,090
15 yr Member
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Quote:
Originally Posted by RUReady View Post
Thanks for the very nice welcome!I have gone through the so called "normal" treatments , SGB's x 20 or so , RFA-which left me with permanent horners ugghhh , all the different meds with mixed results . And am now in the lets try to control the pain mode . Currently taking hydrocodone 10/500 5 times daily , lodine , nexium , dilaudid for break through pain . Some days are struggles to get through and some are better (preaching to choir , right?) . I have been very fortunate with W/C as they have approved all treatments and different procedures with little difficulty . Ketamine seems not to be possible due to cardio problems . Sorry to ramble , just wanted to say Thanks!!!
Hi RUReady, I was just think about something that helped me greatly and prevented sensitivity issues a lot of RSDers have. They taught me this at physical therapy. Take 5-6 plastic bowls and put say coffee grounds in one, cotton balls, beans, sand, popcorn kernals. run your hands, feet thru them every day. It desensitizes your skin-sense of touch. even a bowl of different fabric textures. I believe, because of this, I'm not sensitive to touch, clothes. When my toes started curling up, my Dr. had me in the pool 86 degrees and counter curling them while swimming. In about 4 months my toes were touching the floor again. In 15 years, I am totally mobile except with one hand-it'slike a claw-delayed diagnosis and didn't get pt soon enough.
Before physical therapy, I found massage therapy helpful in warming up the muscles and got further in pt. I even got Blue Cross to agree to pay for massage therapy. A ortho surgeon wanted to break my frozen shoulder after 50 treatments. I called insurance and told them what he wanted to do, but I wanted to continue with pt and massage. they said they would be happy to pay for massage. I didn't know I had RSD for 4 years-so glad didn't have that ortho operate.
Take care, glad to have you. And sorry too for your injury at work doing a good service for 'us'. We all appreciate the work you do for us.
One of your friends,loretta
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