Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-02-2010, 02:35 PM #1
Goingplaces Goingplaces is offline
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Thanks Pete! I appreciate the words of wisdom. Sounds like you have had a long bout of this thing. Unfortunately, not many Neurologists will see you once you've seen another Neurologist.

Since I have seen a Neurologist in the January/February months (who is clueless and doesn't think RSD is the answer) no one will see me. I don't think that is right. The Neurologist that doesn't have a clue is the one sending me to the University of Kentucky at the end of July.

But I can keep trying. Maybe someone in one of the other states or closer areas will be able to help me a little bit sooner. I will check the website.
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Old 06-02-2010, 02:53 PM #2
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Hello GP {we usually shorten names around here LOL},

Nice to meet you, and I hope we can be of help.

What was your original injury from the car accident, and what parts of your body were injured?

You've been to both neurosurgeons & neurologists?
Any physiatrists? {rehab docs}

The spells are something I don't recall seeing mention of on the RSD forums... so that might be something else...

Hopefully as others see your post maybe they will have thoughts on that part of it.

Have you considered looking into expert chiropractors for some of your symptoms? Possibly might be of help for the back problems and maybe the spells also.
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Old 06-02-2010, 04:50 PM #3
keep smilin keep smilin is offline
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Quote:
Originally Posted by Jo*mar View Post
Hello GP {we usually shorten names around here LOL},

Nice to meet you, and I hope we can be of help.

What was your original injury from the car accident, and what parts of your body were injured?

You've been to both neurosurgeons & neurologists?
Any physiatrists? {rehab docs}

The spells are something I don't recall seeing mention of oh the RSD forums... so that might be something else...

Hopefully as others see your post maybe they will have thoughts on that part of it.

Have you considered looking into expert chiropractors for some of your symptoms? Possibly might be of help for the back problems and maybe the spells also.
Hello GP...

You have my attention... mostly because I want to say how sorry I am for what you are having to endure..I have RSD...yup, I am one of them...I have had it for 3 yrs. now beginning with a knee surgery now full body and some internal involvement..Now not to scare you but you must keep reading..educate yourself and now move forward to either a neuro or a pain specialist or an anethsiaologist....someone who is versed in RSD..Not easy to do but don't stop..kiss butts to get there even if they don't want another Dr.'s seconds..who cares..go! See you have some options left for pain control..blocks, meds, on and on..but time is of the essence...RSD is a 4 headed animal, my own pet name for it..but we are here to help you manage and ask away..as we have all felt the pain, despiration and hopelessness..we know how to sweep up behind you to let you know there is life during RSD...we care here...we are family and we want to help..you have come to the right place..Welcome..now do your homework and don't stop...

Gentle hugz..help is on its way!!

Kathy
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