Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-09-2010, 12:54 PM #11
CZZ74 CZZ74 is offline
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Default obstructive sleep apnea

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Originally Posted by RUReady View Post
Loretta , Thank you for that useful information ! I have episodes of what I call extreme drowsiness that come out of no where . I wonder if they could be BP related ?I have never passed out with it but just have a pressure type feeling & cannot stay awake. And as for the sleep apnea I too wake gasping for air at times . However when I went in for sleep study , I could not sleep LOL so they could not complete study .
[QUOT E the sleep apnea I too wake gasping for air at times .][/QUOTE]
Hi - forgive me if I already posted this- but i am going for the sleep test. first they are sending a machine to my home. the one that goes on your finger to measure oxygen thru the night and then I go to the hospital to spend the night.I'm sure i will end up having to sleep with a mask I am awake every hour thru the night. they think i have obstructive sleep apnea. my sweet lab(dog) barks like crazy and wakes me up when i am gasping for air or when I'm not breathing i don't know which? but she is exhausted all day too! I try to find some humor through all of this. I swear my dear doggy goes through everything I do. . she is even lame in one leg now. My sister has been staying with me to help until they stop the blackouts. However they do not think the sleep apnea is causing the blackouts as it causes and increase in blood pressure. so i am confused. i think who ever explained there 6 day hospital stay and the autonomic nervous system has it right about high/low and no control. thank you all so so much. I will let you know what happens. dc
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Old 06-09-2010, 12:56 PM #12
CZZ74 CZZ74 is offline
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Originally Posted by loretta View Post
Hi RUReady, Your welcome, I also get the extreme drowsiness out of no where. Even after sleeping 10 hours. You can get blood pressure kits for $30 at Costco. I still have the sleep apnea gasping, during the day and at night. I forget what I wrote, but RSD is autonomic condition-blood pressure, circulation, immune system disorders. I'm so grateful I sleep well at night since going thru med trial study my Dr. was conduction with 200 people. I don't take a lot of meds. The med that is helping me sleep was for fibromyalgia and it works totally good for my sleep. It's seroquel xr 150 mg. I was on ambien cr, but quite working.
It's so hot already 100 plus in Arizona. I don't get out a lot in the summer because of it.
I think the gasping for air is pretty important to find out the reason and using oxygen at night. I'm going to do the study when I get insurance. I've applied for SSDI. I'm 62. I'll probably turn 65 before I get insurance.
Take care, i take my blood pressure a lot and write it down. I take two double dosed high blood pressure meds.. your friend, loretta

Loreetta, thank you for all the information. I also had a question are you wearing the mask at night? and if so .. how is it/ thanks dc
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Old 06-09-2010, 02:34 PM #13
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Originally Posted by CZZ74 View Post
[QUOT E the sleep apnea I too wake gasping for air at times .]
Hi - forgive me if I already posted this- but i am going for the sleep test. first they are sending a machine to my home. the one that goes on your finger to measure oxygen thru the night and then I go to the hospital to spend the night.I'm sure i will end up having to sleep with a mask I am awake every hour thru the night. they think i have obstructive sleep apnea. my sweet lab(dog) barks like crazy and wakes me up when i am gasping for air or when I'm not breathing i don't know which? but she is exhausted all day too! I try to find some humor through all of this. I swear my dear doggy goes through everything I do. . she is even lame in one leg now. My sister has been staying with me to help until they stop the blackouts. However they do not think the sleep apnea is causing the blackouts as it causes and increase in blood pressure. so i am confused. i think who ever explained there 6 day hospital stay and the autonomic nervous system has it right about high/low and no control. thank you all so so much. I will let you know what happens. dc[/QUOTE]

Hi dc, I never did have the sleep study yet. I have no insurance and waiting for SSDI. I am the one that talked about the autnomic nervous system talked to you about high and low blood pressure, the sympathetic nervous system and the para sympathatic nervous system.
I had to smile about your dear doggy. I have a cat, that lays next to me and loves to be in the same room with me.
Have you ever looked at Dr. Hooshmand website. He practiced RSD 40 years in Florida. He is retired, but left his website up. It is rsdrx.com puzzles list. It is actually 146 questions from patients and his answers. It is excellent.
Hope you are improving-let us know how you are doing. your friend, loretta
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Old 06-10-2010, 02:55 AM #14
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Originally Posted by CZZ74 View Post
Hi - forgive me if I already posted this- but i am going for the sleep test. first they are sending a machine to my home. the one that goes on your finger to measure oxygen thru the night and then I go to the hospital to spend the night.I'm sure i will end up having to sleep with a mask I am awake every hour thru the night. they think i have obstructive sleep apnea. my sweet lab(dog) barks like crazy and wakes me up when i am gasping for air or when I'm not breathing i don't know which? but she is exhausted all day too! I try to find some humor through all of this. I swear my dear doggy goes through everything I do. . she is even lame in one leg now. My sister has been staying with me to help until they stop the blackouts. However they do not think the sleep apnea is causing the blackouts as it causes and increase in blood pressure. so i am confused. i think who ever explained there 6 day hospital stay and the autonomic nervous system has it right about high/low and no control. thank you all so so much. I will let you know what happens. dc
Hi. Depending on insurance, be advised there is a much more comfortable alternative to the C-PAP mask, where the first 3 letters of the acronym (I'm spacing on the fourth) stand for "Constant Pressure Airway . . ." That's right, constant air pressure, same on the out breath, same on the in breath.

Much more comfortable is the BiPAP machine with two pressures: one to inhale, one to exhale. Add to that soft "nasal pillows" that are held in place by comfortable headgear - my favorite brand is the ResMed "Swift LT" - and it's nothing to worry about.

But at least the last time I look, in order to get the BiPAP who have to first fail the C-PAP. How do you fail it? Simple, a week after you have it you tell your doctor the truth: you can't stand the C-PAP, it drives you crazy, you rip it off in the middle of the night, etc., and you need to schedule an another appointment to discuss alternatives. I don't recall if it requires another sleep study or not, but be that as it may, the BiPAP is quite liveable.

Not that I would wish it on someone in their 20s with an active social life.

Mike
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Old 06-15-2010, 05:35 AM #15
CZZ74 CZZ74 is offline
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Default great post on autonomic nervous system

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Originally Posted by loretta View Post
Hi - forgive me if I already posted this- but i am going for the sleep test. first they are sending a machine to my home. the one that goes on your finger to measure oxygen thru the night and then I go to the hospital to spend the night.I'm sure i will end up having to sleep with a mask I am awake every hour thru the night. they think i have obstructive sleep apnea. my sweet lab(dog) barks like crazy and wakes me up when i am gasping for air or when I'm not breathing i don't know which? but she is exhausted all day too! I try to find some humor through all of this. I swear my dear doggy goes through everything I do. . she is even lame in one leg now. My sister has been staying with me to help until they stop the blackouts. However they do not think the sleep apnea is causing the blackouts as it causes and increase in blood pressure. so i am confused. i think who ever explained there 6 day hospital stay and the autonomic nervous system has it right about high/low and no control. thank you all so so much. I will let you know what happens. dc
Hi dc, I never did have the sleep study yet. I have no insurance and waiting for SSDI. I am the one that talked about the autnomic nervous system talked to you about high and low blood pressure, the sympathetic nervous system and the para sympathatic nervous system.
I had to smile about your dear doggy. I have a cat, that lays next to me and loves to be in the same room with me.
Have you ever looked at Dr. Hooshmand website. He practiced RSD 40 years in Florida. He is retired, but left his website up. It is rsdrx.com puzzles list. It is actually 146 questions from patients and his answers. It is excellent.
Hope you are improving-let us know how you are doing. your friend, loretta[/QUOTE]
Loretta I saw my pain management doctor yesterday and I wanted to tell you that he basically explained to me your post on the automomic nervous system causing my problems thought youd enjoy knowing you were right on target. I do use Hoosmands site and like it alot. thank you again so mcuh . dc
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Old 06-15-2010, 05:37 AM #16
CZZ74 CZZ74 is offline
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Default great post on autonomic nervous system

Quote:
Originally Posted by loretta View Post
Hi - forgive me if I already posted this- but i am going for the sleep test. first they are sending a machine to my home. the one that goes on your finger to measure oxygen thru the night and then I go to the hospital to spend the night.I'm sure i will end up having to sleep with a mask I am awake every hour thru the night. they think i have obstructive sleep apnea. my sweet lab(dog) barks like crazy and wakes me up when i am gasping for air or when I'm not breathing i don't know which? but she is exhausted all day too! I try to find some humor through all of this. I swear my dear doggy goes through everything I do. . she is even lame in one leg now. My sister has been staying with me to help until they stop the blackouts. However they do not think the sleep apnea is causing the blackouts as it causes and increase in blood pressure. so i am confused. i think who ever explained there 6 day hospital stay and the autonomic nervous system has it right about high/low and no control. thank you all so so much. I will let you know what happens. dc
Hi dc, I never did have the sleep study yet. I have no insurance and waiting for SSDI. I am the one that talked about the autnomic nervous system talked to you about high and low blood pressure, the sympathetic nervous system and the para sympathatic nervous system.
I had to smile about your dear doggy. I have a cat, that lays next to me and loves to be in the same room with me.
Have you ever looked at Dr. Hooshmand website. He practiced RSD 40 years in Florida. He is retired, but left his website up. It is rsdrx.com puzzles list. It is actually 146 questions from patients and his answers. It is excellent.
Hope you are improving-let us know how you are doing. your friend, loretta[/QUOTE]


Loretta I saw my pain management doctor yesterday and I wanted to tell you that he basically explained to me your post on the automomic nervous system causing my problems thought youd enjoy knowing you were right on target. I do use Hoosmands site and like it alot. thank you again so mcuh . dc
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