Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 06-05-2010, 12:19 AM #1
mom of 3 mom of 3 is offline
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mom of 3 mom of 3 is offline
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Thank you everyone for replying, I started walking a little better tonight after taking vicodin and 800 mg Motrin, I keep my stimulator on even when sleeping the only down side to that is you can only sleep on your side, if I roll over I feel like I put my finger in a light socket...I hear so many horror stories about this disease spreading and people no longer able to walk and take care of themselves and it really scares me!! I did start walking 1-3 miles daily about 5 weeks ago I took a little over a week off and thats when the pain started again, my right foot is still ok I think because of the scs but I now have the burning pain in my left foot and ankle my foot feels really heavy and the spasms are only at night I guess when I relax.. I dont like the unknown just thinking what I already went through, I dont want to go through it again and put my family through it..thank you so much for listening to me after a while you start to feel very alone because my family and friends have no idea how bad this really is.
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Old 06-05-2010, 07:10 PM #2
edever34 edever34 is offline
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edever34 edever34 is offline
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I have SCS and I only get spasms at nite. Do you have a Muscle spasm med? If not get one Monday from your Dr. I turn my SCS way down at nite,as I am a back sleeper. I will pray for your relief this weekend. Fondly-carol
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Old 06-07-2010, 08:44 PM #3
mom of 3 mom of 3 is offline
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mom of 3 mom of 3 is offline
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feeling much better today, after talking to my Rep from Medtronics I found out I had my scs on the wrong setting.. everything is still new to me but I know I will get the hang of it. Thanks again everyone
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