[SandyRI]

Hi guys,

I finished my 20th ketamine infusion with Dr. Getson's office in Marlton, NJ last week. It was the eighth week of my treatments - I started the 10 day protocol with him on April 19th. I've never been informed of the strength of my infusions, they've only told me that they were very low compared to most of their other patients.

I feel pretty good. Not perfect, I still have problems with the back of my head in the occipital area and I suspect I always will. But I am off all meds except for an occasional Fiorcet (which has a minimal amt of opiates). Considering that last August/Sept I was up to 100 mcg of Fentanyl that is just wonderful for me. (I needed Suboxone to get off the Fentanyl).

Dr. Getson is one of the nicest doctors I have ever met. I would highly recommend him to anyone looking for someone to help them with their RSD. He is truly dedicated to his patients, and will go out of his way to help you. I love him. He is uncanny in his ability to figure out what is wrong his patients and how to fix them. Substantially all of his practice is dedicated to RSD so he has an enormous amount of knowledge about the subject. I traveled from RI to NJ (several hundred miles) weekly for my infusions and it was worth it. I am in remission and sincerely hope to stay that way. I have the comfort of knowing that he is on my side and is only a phone call away - I know that he will always be there to help me.

Even though his office told me that my bills needed to be paid in advance, once I arrived and began receiving treatments, I was never billed. I am WC and my ketamine case is still pending in RI WC court. I was pre authorized for United Healthcare as "In Network," but they consistently remitted checks directly to me at out of network rates. I signed the checks over to Getson but his office never cashed them. Nor did they EVER send me a bill. He is patiently waiting for my court case to be heard this Thurs.

There is a local doctor in RI that just started doing ketamine infusions. He refuses to even BOOK an appt with me because of my status with WC. He want $$$!! In contrast, Getson is owed 20 times about $1500 or so, plus whatever he charges for an occipital block.

I had a really hard time with his office before I started receiving treatments there - I waited a few months longer than I was promised, and was treated extremely poorly by his office staff. His staff just does not do him justice. It is a shame.

For anyone that needs a good doctor and can get to Marlton, NJ, (exit 4 off the Turnpike, about 15 miles east of Philly), I can't say enough good things about Dr. Getson. He fixed me! (Mostly) And he is kind, incredibly hard working, and dedicated to helping those of us that suffer with this hideous illness. His number is 856-983-7246.

Love and Peace, Sandy

[Mslday]

Dear Sandy,

I'm so happy you have found good results from the ketamine. I do hope everything gets settled with your WC case and that you can move forward with your life. Good for you to go after the treatment that you need and not wait for some bureaucrat to rule on what medical procedures are appropriate for you. You are very fortunate to have found such a kind and caring doctor. Thanks for sharing your experience.

Take good care.

MsL

[gabbycakes]

Originally Posted by SandyRI

Hi guys,

I finished my 20th ketamine infusion with Dr. Getson's office in Marlton, NJ last week. It was the eighth week of my treatments - I started the 10 day protocol with him on April 19th. I've never been informed of the strength of my infusions, they've only told me that they were very low compared to most of their other patients.

I feel pretty good. Not perfect, I still have problems with the back of my head in the occipital area and I suspect I always will. But I am off all meds except for an occasional Fiorcet (which has a minimal amt of opiates). Considering that last August/Sept I was up to 100 mcg of Fentanyl that is just wonderful for me. (I needed Suboxone to get off the Fentanyl).

Dr. Getson is one of the nicest doctors I have ever met. I would highly recommend him to anyone looking for someone to help them with their RSD. He is truly dedicated to his patients, and will go out of his way to help you. I love him. He is uncanny in his ability to figure out what is wrong his patients and how to fix them. Substantially all of his practice is dedicated to RSD so he has an enormous amount of knowledge about the subject. I traveled from RI to NJ (several hundred miles) weekly for my infusions and it was worth it. I am in remission and sincerely hope to stay that way. I have the comfort of knowing that he is on my side and is only a phone call away - I know that he will always be there to help me.

Even though his office told me that my bills needed to be paid in advance, once I arrived and began receiving treatments, I was never billed. I am WC and my ketamine case is still pending in RI WC court. I was pre authorized for United Healthcare as "In Network," but they consistently remitted checks directly to me at out of network rates. I signed the checks over to Getson but his office never cashed them. Nor did they EVER send me a bill. He is patiently waiting for my court case to be heard this Thurs.

There is a local doctor in RI that just started doing ketamine infusions. He refuses to even BOOK an appt with me because of my status with WC. He want $$$!! In contrast, Getson is owed 20 times about $1500 or so, plus whatever he charges for an occipital block.

I had a really hard time with his office before I started receiving treatments there - I waited a few months longer than I was promised, and was treated extremely poorly by his office staff. His staff just does not do him justice. It is a shame.

For anyone that needs a good doctor and can get to Marlton, NJ, (exit 4 off the Turnpike, about 15 miles east of Philly), I can't say enough good things about Dr. Getson. He fixed me! (Mostly) And he is kind, incredibly hard working, and dedicated to helping those of us that suffer with this hideous illness. His number is 856-983-7246.

Love and Peace, Sandy

Hi Sandy,

So glad to here you are finished and feel well and got relieve. You worked so hard for this congratulations.. Hope to here from you soon.

Gabbycakes

[hope4thebest]

Sandy,
Incredible news..seems like a miracle!!
But this is truly the result of your perseverance, your research, your patience (although I know it was an exasperating and rocky road, to say the least!!) and your finding the right medical doctor to help you!!
Sandy, if I were there I'd give you a big hug of happiness for you! nevertheless, I'm sending a big, huge cyber-hug!!
Will you go back for boosters as needed, or are you all done with treatment?

Relief is here, just in time to enjoy summer and spend some time with your family!!!!
love, from Hope4thebest!!! xxxoxoxoxox

[keep smilin]

Originally Posted by hope4thebest

Sandy,
Incredible news..seems like a miracle!!
But this is truly the result of your perseverance, your research, your patience (although I know it was an exasperating and rocky road, to say the least!!) and your finding the right medical doctor to help you!!
Sandy, if I were there I'd give you a big hug of happiness for you! nevertheless, I'm sending a big, huge cyber-hug!!
Will you go back for boosters as needed, or are you all done with treatment?

Relief is here, just in time to enjoy summer and spend some time with your family!!!!
love, from Hope4thebest!!! xxxoxoxoxox

Dear Sandy... You are such a good sport and a true inspiration..I am so happy that you have gotten some relief and I hope and pray that you will be able to continue enjoying the goods from this treatment..You worked incredibly hard for this intervention and you deserve the best results!! If I am never able to have the Ketamine, I am so happy you were able to have it..like I said..yur awesome!!!

Hugz and prayers...Kathy

[SandyRI]

Thanks so much - I pray daily that all of us get the relief that we need to go on with our lives.

I will likely always need boosters. Because I have yet to go more than 10 days without treatments, I do not yet know how I am going to do. Getson believes that eventually I will be able to go for several months between infusions. Only time will tell. I am still a human barometer - my head knows when it is going to rain - I will never be perfect. But I am much better than I was and for that I am profoundly grateful.

The rest is up to me I believe. I am trying to maintain a positive outlook, gain some weight back, eat healthy foods, and RELAX. The last part is the hardest for me!!

Please take care, xoxoxo Sandy

Originally Posted by hope4thebest

Sandy,
Incredible news..seems like a miracle!!
But this is truly the result of your perseverance, your research, your patience (although I know it was an exasperating and rocky road, to say the least!!) and your finding the right medical doctor to help you!!
Sandy, if I were there I'd give you a big hug of happiness for you! nevertheless, I'm sending a big, huge cyber-hug!!
Will you go back for boosters as needed, or are you all done with treatment?

Relief is here, just in time to enjoy summer and spend some time with your family!!!!
love, from Hope4thebest!!! xxxoxoxoxox

[SandyRI]

Dear Kathy,

Please don't ever give up hope....keep on trying....or try for the other infusions that FMichael writes about. Just stay on top of everything new that comes out. Have you tried Lidocaine? I had 7 infusions - it took away the terrible burn for me.

I truly wish you well and will keep you in my prayers.

XOXOX Sandy

Originally Posted by keep smilin

Dear Sandy... You are such a good sport and a true inspiration..I am so happy that you have gotten some relief and I hope and pray that you will be able to continue enjoying the goods from this treatment..You worked incredibly hard for this intervention and you deserve the best results!! If I am never able to have the Ketamine, I am so happy you were able to have it..like I said..yur awesome!!!

Hugz and prayers...Kathy

[SandyRI]

I owe you a phone call...you were there for me when I had questions before my infusions and I will never forget your support. It meant the world to me. Thanks so much.....

XOXOX Sandy

Originally Posted by gabbycakes

Hi Sandy,

So glad to here you are finished and feel well and got relieve. You worked so hard for this congratulations.. Hope to here from you soon.

Gabbycakes

[keep smilin]

Originally Posted by SandyRI

Dear Kathy,

Please don't ever give up hope....keep on trying....or try for the other infusions that FMichael writes about. Just stay on top of everything new that comes out. Have you tried Lidocaine? I had 7 infusions - it took away the terrible burn for me.

I truly wish you well and will keep you in my prayers.

XOXOX Sandy

Dear Sandy..

I so appreciate your prayers and well wishes.. I will never lose focus and hope..however it has been like moving a mountain for help..We all know that to be true..Yes, to the lidocaine.. no prevail..but again..I will never give up as life is too precious and so are you and everyone here..we have eachother and our support ..it is a win/win..
Continue to feel well my friend..

Love, Kathy