Mike.....

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This I lay personally credit to my Baclofen, which is a pity because it's the best anti-cramping/spasm medication I've taken yet.
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Do you find Baclofen affects your memory - maybe that's what up with mine?! I take 110mg a day - (along with other stuff as needed - diazipam and triphenydriyl for muscle relalxants and various opiods for pain etc etc etc).

in what way does it affect it?

Thanks

Rosie

Rosie -

When I was still trying to practice law, my neurologist put me on Baclofen. At most, it would have been 40 mg./day. Within no more than a day or two it became clear that I was forgetting too much stuff. Specifically, a computer access code that I had punched in every morning for two years was suddenly "gone." Two days after going off Baclofen, it reappeared.

Now, this may seem trivial, but I was never the most organized guy, and I compensated for it with a good memory, to the point that I could due a week's billings from the top pf my head, not that it represented the best practice (usually because I invariably underestimated the time anything other than something really public like a court hearing or the like would take). But there were other times when I needed a decent short term memory as well, such as when I would have a seemingly incidental telephone call and then - days later - key details that didn't make it into my notes had to be recalled and put down in a sworn statement for submission to a court.

So that when this issue popped up with Baclofen, I just jettisoned it without a second thought.

Now, however, as I sit hear in my quasi-dotage, I can afford to be a little forgetful and am learning how to tell people with no shame that they look very familiar but I just can't place then. (And pray that it's not an administrator form one of my son's schools with whom I met the week before.) Yup, it's down to that. Pride goeth before the fall.

Mike

I too take baclofen 40mg..
I am pretty sure my doctor said that that was the maximum dosage they could put me on.

take care

It seems my higher brain functions are mostly unaffected, however this doesn't seem to include things like math skills. My memory is getting killed by gabapentin but should return if I quit it. I'm often distracted by pain, discomfort, and worry.

I think we all get stuck in this rut. Now what was I talking about. I used to be famed for my memory and now..... The best thing to know is you aren't alone. I don't take any meds for this, I exercise my brain. Word games, memorization exercises, etc. I figure by the time I am 60, I can really pretend I am a crazy lady and no one will care!

Hey Micheal - thanks!!! I have been on baclofen for so long now that I have no idea what is the meds, the pain or the exhaustion!!!!! I can see how it can be difficutl though! Luckiy I usually have my minions (carers) with me and so they write everything down - it means that I have to have a diray on me and mark every day etc etc and then I know where I am. I have fughes of forgetting everything... for instance my new computer training I have forgotten to go to twice so far...... and names! it's awful - can never remember them...!!! or speech for that matter - especially in the mornings.. everyone gets used to playing "what's the word".. so frustrating! I really don't feel I can come of baclofen at the moment though - it is part of a cocktail that reduces my spasticity to a level I can handle... (without it the dystonia spasms dislocate my joints (Which are lax from EDS) and that then makes my RSD evil........

Sandel - the max dose you can go on is 110mg - BUT.... if you are on other stuff (Heart meds etc? ) it might mean you can only tolerate a lower dose!!

Does anyone find that you remeber really stupid stuff?

Rxxxxxxxxxxxxxxx

Ok, I know this is an old thread, but can I just say - ARGH!!!!
I'm actually having a good day - the weather is beautiful and my pain level is low....and I CAN'T CONCENTRATE!
I've been sitting at my computer for....3 hours, now, trying to write a paper. I have ONE page done.

Ok.....done whining.

Does this happen to you guys?

Yeah, but I had ADHD(Inattentive) long before I had RSD.

Mike

Ditto, Mike - which is probably what's wrong with me today.

BB, I take flax seed oil, fish oils and evening primrose oils. Good for you~
"Those with rheumatoid arthritis, psoriasis, or other auto-immune disorders. Omega-3s may help relieve the inflammatory symptoms of such auto-immune diseases by suppressing the immune response. Thus, they can help reduce the joint pain and swelling of rheumatoid arthritis. The Arthritis Foundation says the supplements are worth trying. Clinical studies suggest about 3 grams of omega-3s a day." (http://www.wellnessletter.com/html/ds/dsFishOil.php)