Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-01-2007, 08:22 PM #1
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I hate the convo stuff - it makes me sound so dim! well.. it's sorta green and red but not really and it's sometimes gold and spiky...... (anyone guessed yet)
Over the last year or two I have developed a tonal language that mum and the carers can understand (And some mates) - esp in the morning when my tablets haven't kicked in so the pain is unbearable and i can't really talk very well..)

I sound like the soup dragon off the clangers!

do you get patches when you can't reember what happened? I have lost an entire year to that (when I was 17) and still get it sometimes where I find I have an hours block where I don't know what happened - very weird!

bizzarely ketamine hasn't helped me - maybe that's cos my brain is like a colander anyway without adding meds etc!

take care

rosie xxxxxx
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Old 02-01-2007, 08:54 PM #2
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I think the memory problems are horrible. I didn't know wheather it came from the RSD, Fibro, or Depression.

Since Bill passed, I have to take care of the bills and I have already forgotten to pay some. I am trying to decide wheather to turn them all over to Susan to take care of along with my check or keep trying to do it myself.

I use to be really good in Math. That's a joke anymore. I was just telling Susan I need to get a calculator so when I go buy groceries I don't go over my budget. I use to be able to almost figure to the penny how much I was spending.

I forget what day it is. I forget appointments. It's just unbelieveable how much these diseases suck out of us.

You are definately not alone in this.

Ada
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Old 02-01-2007, 10:06 PM #3
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I don't have RSD but TOS instead- same problems - not as much now that my symptoms have calmed - but during the worst of it --YES !!
I thought I was getting Alzheimer's, ADD , couldn't think of or say the words I wanted to say.
Forget about crowds and following conversations -
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Old 02-02-2007, 09:30 AM #4
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I freaked after I recited grace at the table.My kids thought I had lost
my mind.I put it together but it missed some parts.They thought this was funny.I just went along with the kidding. Later the tears poored.
You know kids if there is a crack to fill they fill it.
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Old 02-02-2007, 03:09 PM #5
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I can't remember hardly anything when I have problems with RSD. I search for a word that I can't think of. I can't pay attention in school or do tests very well. My teachers are awesome though, and they totally understand when I can't do work.
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Old 02-02-2007, 10:43 PM #6
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I think I have developed serious ADD- Word finding difficulties and memory problems

We joke about it but it is really frustrating!

Debbie
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Old 02-04-2007, 10:43 PM #7
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My friend gave me a great little notebook for Christmas so that I could remember my days/ life!! It's called Me! A Personal Journal, from the Write It Down series. By www.JournalsUnlimited.com
Another good tool for the memory slippage is by DayTimers Inc. They've just created a calendar pak for Brain Injury recovery that looks so wonderful it made me drool!! I'm sure it would be terrific for people with memory and concentration decline. it has color coded tags and a helper pak too.
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Old 02-06-2007, 05:05 PM #8
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Yes!

What was I saying LOL

I walk into rooms and forget why I went there... I mix words up all the time and say up when I mean down and such. Also, I totally forget what I am saying. CRPS, what a wonderful thing!

Rain
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Old 02-11-2007, 11:22 AM #9
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I've had RSD for 8 years now, but and have definitely noticed some of the impairments you all describe. I do not seem to suffer as much, though - and I wonder whether that's due to the fact that I've been treated for severe ADD since I was 8.

When I don't take my ADD meds, I can't concentrate, hold a thought pattern, engage with people well...anything. I wonder now how much of that is my RSD and how much is my ADD!
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