Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-02-2007, 11:09 AM #1
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Hi Vic,

What a very nice surprise to see your post, what a story. I'm relieved to learn that you like your doc so much, I hadn't realised that he was one of the good guys. Not that I know anything about it, but I reckon you are an ideal candidate for a pain pump. Out of interest, have you ever done any research into Prialt, the cone venom drug? I haven't found anyone who has tried that yet, it is only administered as an intrathecal pump - but it sounds seriously worth a try if at all possible (provided it would work with your other complications, of course...).

Can't remember who and where, but one of the current posts here has someone reminding us that pain itself can be very damaging, that's so true - I sincerely hope that this all happens for you very soon - and I'm delighted to hear that you've ungritted the teeth for long enough to get 3lbs of meat on your bones.

So...well, yes, I won't bait you with "what's this RSD isn't real" business, I'll just wait on it - always such a pleasure to read your witty, elegant prose,
xxx all the best!
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Old 02-03-2007, 02:57 AM #2
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Default Hey bro!!

It is truely nice to see you posting again! I just went through a monitor change here, the old one crapped out a few days ago. I got one of those flat monitors, man do I have desk space now

Thanks to Mike I have a formal complaint against the doc that sent me to withdrawals. THANK YOU Mike!!!!

The state already called me, and it looks like this medical clinic will get into heaps of trouble, and worse if they did this to anyone else.

One of the doctors there that I email back and forth with, di give me a name to check out, but it will be at least 4 months to get an appointment

Check your email bro, sent ya a messge. Plus this vascular doc that I met really likes what you have wrote in your articles. He is doing some research, and is going to let me know what he has discovered this weekend. I will let you know in email. To bad he is on the east coast, or I would go pay him a visit lol. He is a real standup type of guy though, and I respect what he has to say so far.

Take my friends
All the best!
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Old 02-05-2007, 01:12 AM #3
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Oooh, Allen,

I'm so delighted you've managed to file a formal complaint, this place really should be taken to task for the treatment meted out to you; I had a feeling this doc friend would be good news - you of all people need some good luck in your life, maybe the tide is turning...

Can't wait to hear what happens next on this!
all the best
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Old 02-05-2007, 05:02 AM #4
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Thumbs up He wrote back

Thanks Pat!

Your support means the world to me!

Well the doc wrote back after doing a lot of research on CRPS, and vascular systems. Wouldn't ya know that Vic is 100% correct! There is no information relating vascular to CRPS. Everyone thinks it is a nerve disorder, and treats as such. Well this vascular surgeon said he is a very busy guy, has to do so many procedures a month or he loses his Excellence certification. Very important now a days as all the doc's are trying to market for everyones dollars. Again something that Vic has related to.

Anyways, he agrees that when there is an ischemic problem, there is a 6 hour window where you have to either get the blood flowing again, or there will be tissue damage, and nerves are the most sensitive to this. So he agrees that hypoxia can and does cause CRPS. He said they call it by other names usually, that is why you don't hear them saying CRPS.

Unluckily though, he cannot take the time to chase this down, and document it as he is too busy in his current field. He said the squeaky wheel will get the grease sooner or later, so keep up the great work and studies in this area. He will do what he can as the cases come up in his work though, as he thinks it is groundbreaking research.

So that makes 2 vascular surgeons I have had contact with backing up Vic's research.

Vic you are DA MAN!

I was gonna email this to Vic, but thought it would be of benefit to everyone to read. He also pointed out some pictures he found of people with RSD on the internet. He linked me to them, and said see how they look like diabetic problems with all the discoloration. That is from lack of circulation, ie: ischemic conditions. There was about 4 pictures. I looked around further at all the sites I have saved, and realized everyone of the pictures where it looks deep purple, or blueish is most likely the culprit of ischemic conditions. Thus tissue damage, and most likely a lot of nerve damage, as he said they are more sensitive to this condition.

It didn't take a lot of proof to sway me though, as I have been in the ischemia camp since day one of my ordeal with RSD. Getting to know Vic, and his work just solidified my position further. This was just icing on the cake!

Well everyone take care, and I wish less pain on everyone!
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