FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
|
![]() |
#1 | ||
|
|||
Magnate
|
Sometimes I have to plan like if I have an appointment but otherwise I take 1 day at a time. I know many here have more obligations then I so that is not possible. I just try to get through my days in the best possible manner mentally and physically. For my pain it is important to push but not too push too much where I pay for days after. For me it is also important to identify what is the physical pain I can't push through and the mental pain that makes me feel like I don't want to do anything. Especially when I have had a few ruff days pain wise back to back mentally I get down where I don't feel like do anything so that is important to push through. If I take on activity that I know will result in a high pain later it does make me anxious and hard to enjoy but at the same time I sometimes feel like I at least accomplished. It depends on the type of pain it results in.
|
||
![]() |
![]() |
"Thanks for this!" says: | Kakimbo (06-29-2010) |
![]() |
#2 | ||
|
|||
Member
|
Quote:
Happy hugz, Kathy...KS ![]() |
||
![]() |
![]() |
"Thanks for this!" says: | Kakimbo (06-29-2010) |
![]() |
#3 | ||
|
|||
Magnate
|
Keep smilin I agree that things that I used to never give a second thought or were natural have become something I have to think and stress about. I think that is where a lot of mental stress comes in. Where one has to worry about the little things that should not be a concern. I try to stay in the moment and remind myself some how I get through but still stressful. This condition and the people like all here have taught me hope. I try to hold onto it. Somedays I am better at it then others and in no way am I up to the people here in their outlook. Trying to learn and thankful to have good teachers so to speak on this board.
|
||
![]() |
![]() |
"Thanks for this!" says: | Kakimbo (06-29-2010) |
![]() |
#4 | ||
|
|||
Member
|
Quote:
You are a very important part of our family here...Your experiences and advice here is noteworthy and very helpful...No king pins in this family...weezz.. a great family!! Best noted that we all have our days..days of low, hopeless feelings and other days when we can move mountains..that is why we take each day as it presents itself and try not to encompass too time ahead..Live in the moment and allow your mind and heart to feel the love..its free ..it feels much nicer that the pain and it will take us further... Hugz....Kathy ![]() |
||
![]() |
![]() |
"Thanks for this!" says: | Kakimbo (06-29-2010) |
![]() |
#5 | ||
|
|||
Senior Member
|
RUR.......I hear ya !
For me....and I'm sure most of us, the wish to avaoid added pain is compounded by poor sleep and being exhausted all the time. I usually feel like a need some external motivator to force me to do something, like going to an event or plans with friends, but I can't tell you how often I've had to cancel those type of things too.
__________________
. Gee, this looks like a great place to sit and have a picnic with my yummy bone ! |
||
![]() |
![]() |
"Thanks for this!" says: | Kakimbo (06-29-2010) |
![]() |
#6 | ||
|
|||
Magnate
|
Keep smilin thanks you have such words of comfort and wisdom
Finz for me it is a catch 22 sometimes when I have to be somewhere I can do it but I have also had to cancel. The other issue is with set plans is that it causes extreme anxiety before hand. Like if I don't feel well etc worries. So that is a stress in itself. I can very much relate to the lack of sleep. I guess it is just about doing the best we can in a bad situation and creating the best life we can with the limits we have. |
||
![]() |
![]() |
"Thanks for this!" says: | Kakimbo (06-29-2010), keep smilin (06-28-2010) |
![]() |
#7 | ||
|
|||
Member
|
Hey everyone!
I love your posts. I understand them and I feel at home to respond and share with all of you. Thank you for being honest about your hurts and your fears. This monster honestly scares the crap out of me and I feel very alone in my thoughts. I am having very contriversial (sp?) treatments and noone that I know has any knowledge of them but me and my doctor. It's very scary. This board has brought me out of my shell and has given me a sounding-board to feel secure enough to share and ask questions. Without all of my friends here I would not be where I am with treatment or faith or the ability to cope. I have learned more from your posts than I could ever learn from a "trained professional". I only hope that I have influenced one person and helped them to feel better. That would be my goal; just to have aided someone to have a better sense of relief and a sense of calmness. Love to all... Kim
__________________
. . |
||
![]() |
![]() |
![]() |
#8 | ||
|
|||
Member
|
Quote:
Kim.... Oh..Me!!!! me.. let me be the person you have infleuenced...and I ain't whistling Dixie, Kim.... You are a darling and I am so happy to know you...... SO nice to read your sweet complimentary post...thank you for all of it!! I know it came straight from your heart and I am so appreciative of it.. Much love for a pain-less day!! Kathy ![]() |
||
![]() |
![]() |
"Thanks for this!" says: | Kakimbo (06-30-2010) |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
EMG tomorrow | Myasthenia Gravis | |||
MRI of hip tomorrow | The Stumble Inn | |||
SGB tomorrow, really can't eat? | Reflex Sympathetic Dystrophy (RSD and CRPS) |