Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-03-2007, 03:13 AM #1
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Default Lyrica

Ive got a quick question for the board... I seen my Dr today because I had a mild flare due to the weather here in Houston... He checked me over and all is good..Whew! Anyhoo, he put me on Lyrica 75 mgs... Im already on 3200 mgs of Neurontin and 10 mgs of Lexapro a day.. Is it normal for Lyrica to be combined with Neutontin? The Neurontin does do the trick for me, Ive never had a problem with it at all... But doc thought it was a good idea to start the Lyrica as well.. Just curious thats all!

-Heidi
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Old 02-03-2007, 03:39 AM #2
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The other day my doc said that he would not combine the two because of the sleepiness but that was it
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Old 02-05-2007, 03:38 AM #3
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Does anyone else on here know much about Lyrica? I took my first dose this last Friday night.. 75 mgs before bedtime.. Within 45 mins to an hr, I felt stoned! I totally hated this feeling, and am still having it! Will this subside after my body gets used to taking it? Like I said in my first post on this subject, I am already taking 3200 mgs of Neurontin... So, does anyone know if its normal to combine the two? Im guessing it is, or my Dr wouldnt have put me on it knowing I am on Neurontin.. Im just curious is all..
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Old 02-05-2007, 10:33 AM #4
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My hubby is on Lyrica - As far as I"m concerned (JMO...mind you) it is an off-shoot or same thing as Neurontin.

See....

Neurontin was involved with a HUGE class action lawsuit because it was being used for off label (unapproved FDA reasons) purposes. Many people became suicidal, had horrible mood swing (my hubby included) and committed suicide. The FDA got on their case and WOOSH - Within months Lyrica was out and on the market. I feel - again this is JMO - that it is the same thing or just slightly altered and the FDA has approved it for only 1 or 2 other conditions beyond what Neurontin is approved for. It was enough not to get Pfizer "into trouble".....

My hubby is on almost the lowest does of Lyrica possible....he was experiencing mood swings (although nothing compared to the Neurontin) - (BTW the med was TOTALLY against my wishes...) - When the moodswings were mentioned the put him on an anti-depressant.....Now one can argue - was/are the moodswings due to true depression due to his condition or caused by the meds....Honestly I really dont know....BUT the anti's have helped with his moods and he feels better (emotionally) compared to a few months ago.....SOOOOOOOOOOOOOO....

As far as other side effects hubby said he had issues with his eyes feeling tight and feeling dizzy then he would get very tired. These side-effects have subsided though and he's adjusted to that.

I would check with others even if you have to call around to a few Dr's regarding mixing the two meds - I would think it would not be good for you - BUT - I'm not a Dr.
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Old 02-05-2007, 11:04 AM #5
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Hi,

Just FYI, there's a Lyrica thread right now here (NeuroTalk) on the "Medications" forum which might be of help and give additional info
all the best.
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Old 02-05-2007, 11:24 AM #6
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Default frank is on lyrica.....

75 mg three times a day...he has not had any adverse reactions except for the weight gain................but he is now on methadone, oxycodone, and zanaflex too..........unfortunatley nothing is doing anything for his pain.......

he had a catheter placed almost two weeks ago, giving him good shoulder relief (no relief for his elbow, forearm or hand tho) with roprivicane, but it became dislodged and will be replaced tomorrow morning at U of M hospital.......

he is being evaluated in three weeks for an scs ..........anyone know what that entails? they told us it was to see how he will react to being pain free????///// duhhhhh, first thing he would do would be jump up and down and say IT IS ABOUT TIME.......(altho i don't think he will be totally painfree) and i am shocked that he will even contemplate doing this procedure.........he is at the breaking point from the pain.

anyone know what the eval will be like? they told us it will be about three hours....................

thanks
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Old 02-07-2007, 05:21 AM #7
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Default Just taken off Lyrica

I was diagnosed with RSD 3 months ago after a 5 level lumbar laminectomy (my surgeon dismissed me when I went to him with my RSD pain, He said his surgery was successfull, and I had to go figure out my pain myself). Anyway, he was the first to put me on 75mg Lyrica twice daily. Yeah, first time I took it I was stoned for days. Over the next 3 months I was slowly increased to 200 mg twice daily, and I also gained 30-40 pounds. Yesterday I was taken off of it (cold turkey - hope this isnt a problem cause I know have a migraine) and put on Cymbalta. Hope this works better.

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Old 02-07-2007, 09:05 AM #8
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Default I was on Lyrica briefly to replace Neurotin then off

Lyrica and I did not agree. I take 1800 mg of neurotin for burning pain. my doctors wanted to switch me to Lyrica. I not only felt stoned. I could not remember basic things lilke which side of the road a stop sign is suppose to be on. I only drive a range of about two miles but it was dangerous. I despise the stuff. My husband is on it for an entirely different problelm, foot pain, and has had 6 near fatal accidents. Enough said. Becareful wiht it.
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Old 02-08-2007, 07:28 PM #9
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How fast did you work up to the 3200 mg of Neurontin, Heidi??

Did you have side effects from it at all?

Thanks.
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Old 02-09-2007, 01:02 AM #10
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I was started on 2400 mgs of Neurontin when I was first diagnosed with my RSD back in Aug, 06... I was upped to 3200 mgs in Dec... Last wk when I seen my Dr is when he put me on 75 mgs of Lyrica ONCE a day at bedtime... I am taking both the Nuerontin and the Lryrica...

I have NO side effects at all from the Neurontin... Ive heard alot of people have many side effects from it, so I suppose I should consider myself lucky?!? Last wk with my first dose of Lyrica I felt stoned.. That was the only day.. Since then Ive been just fine... I sleep really well though! lol Maybe that is why the Dr has me take it at night??

-Heidi
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