Hey

just wanted to welcome you here - it is a brill site to be part of (though we all wish we weren't here!).I have full body RSD after a fall 5 years ago.

Hope that you find the info you are looking for here

Rosie xxx

Hi and Welcome,

I have RSD also. I was diagnosed after a sports inquiry and many surgeries to correct, which was corrected, but was left with a somewhat serious case of RSD. I am with an excellant Pain Dr. who specializes in RSD among other pain conditions.

I also had a go,go,go type personality before all this, it's hard to get adjusted to.

My suggestions is, to seek a Pain Dr. who has experience with RSD. Depending on what part of the country you live in try to seek out teaching hospitals. I see Drs in NYC and also PA. THere are many good RSD doctors just don't go to any Pain Dr. Use the phone don't run around to a lot of appts. To stressfull.

If you live on the East Coast of course NYC, Boston Mass-General, John Hopkins-MD,Tampa-FL( I don't know to much about the FL group). In the MID-WESt of course Mayo-CLinic,MN,AZ and FL branches, CLeveland Clinic-OH. I hope this helps. I have had RSD for almost 4 years and I have done a ton of research.


I truly wish you the best.

Ann

Thanks so much for your responses. Right now I feel like my Pain Mgmt group doesnt really have much experience with RSD. Yes, they tried Nerve blocks (none worked), have me on Lyrica (I think my dose needs to be increased. taking 200 mg twice daily.), also on Kadian. They sent me to pt, which only agravated my pain.

So, does anyone know of a good pain management doctor in palm beach. I live in Lantana.

hi laurie,
i feel your pain. i am a 54 year old gramma of 6 boys and i know all about losing the person you were and becoming something you are not happy becoming.
i was a very busy icu and post op nuse for years and then came to a dead stop.
that was 10 years plus ago and some days i accept it and some days i don't and i think i will always feel that way.
we can only adapt and do what we can, some days more than others.
your personality will make you more frustrated but it will also give you the push to stay active and fight the good fight.
i am glad to meet you and hope you find some help and support here.
joan