Gosh I can top you both.........I have had Fibromyalgia since I was a child......I felt like an old lady even when in junior high. Once PE was started & required that was all she wrote as far as being in constant pain went. Even as a young child I was in pain as I had cramps in my legs so bad they would have me curled up in a corner of the couch crying. My Mom even took me into a doctor to see what was wrong & that was back when you only went to a doctor if you close to death. I am talking in the late 50's to early 60's as I am now going to be 57 July 31st. The doctor of course, dx'ed me as having "growing pains". I don't even know if they even use that term now days for any reason. Talk about a body failing one...............and it seems it has been down hill ever since as far as pain goes.

I am relatively healthy for my age. I only take singular & Rhineacort nose inhaler for allergies & niacin & simvastatin for messed up cholesterol, too high bad stuff & too low of good stuff. Other than that I take meds for pain & Evoxac for dry mouth from Sjogrens. Oh I do take calcium for osteopenia. That is it.

I know what you gal's are thinking & going thru. All I can say to you both is hang in there. Good things come to those who wait, they say. Altho, I am still waiting..............LOL

DebbyV

Angela -

A few years before I had RSD, I had pinched nerves in my neck, due to spinal stenosis and exacerbated by exercise, whether swimming laps at night at the gym (then the great joy of my life) or even running on a treadmill.

After years of CRPS, I can say that, bar none, the radiating pain down my arm was the sharpest pain I have ever experienced.

There is a cure, but it involves finding either an expert "interventional radiologist" or an equally qualified ABPM certified pain medicine specialist: and given the choice, I would go with the interventional radiologist.

Under flouroscopy, and with a local anesthetic, you get an epidural steriod injection, delivered through a four inch needle at the front of your neck. (I know, real pretty, but just like dinosaurs, we have too much armor plating on the back.) For me, it took two applications, a week or two apart, to cure it, but then it was gone! That is until a year later when I did some imprudant excercise again, but then it only took a single shot to knock it out and that was 11 years ago.

But again, this is an extremely delicate procedure, which should probably be attempted only at a university hospital or a private clinic of equal or higher standing. E.g., the guy who gave it to me at UCLA said he would never train his residents in the procedure. ("I would be wrapping my hands around theirs the entire time.") Board certified clinical fellows only need apply.

Mike

I don't have this experience but am sending thoughts and am so sorry you are going through so much. I know this is hard to handle on every level. I know the no cure is hard but hopefully with proper management you can get a full life back. I hope your CT gives answers so you can get relief. I do wonder if you need to see someone else cause one the pain doc office blowing you off and then ordering an mri when you can't have one. It does not sound like they are on the right page. I am not sure if it is possible though for you to see someone else but just a thought. Hope you feel better.