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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | ||
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Senior Member
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I'm so, so sorry. Don't know what else to say....please keep your chin up and try to stay healthy.
Much love and peace, Sandy |
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#2 | ||
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In Remembrance
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I'm sorry too, like Sandy, I'm stunned, and can only offer you my prayers. I wish there more that I could do...
love and prayers, Pete |
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#3 | ||
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Senior Member
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Stressed,
I am so sorry to hear what you have been going through ! My dog (that we got after the RSD monster struck) has been such a God-send to me with this condition. Whether I'm having a good day or bad day, she just wants to be by my side. I can't imagine your grief over losing 6 beloved dogs and your children's other pets. You have so much to grieve right now.....the pets, the loss of your home 9and all the belongings with a lifetime of memories) on top of dealing with the challenges of RSD and the threat of serious financial problems. I pray that you can stay strong through all of this and that God will send some form of relief to help you and your family. ![]()
__________________
. Gee, this looks like a great place to sit and have a picnic with my yummy bone ! |
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#4 | |||
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Senior Member
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Dear Stressed -
I join the others in expressing their concerns for you. One of the things that peple don't realize about folks with RSD is that after a while, the disease begins to effect our emotional regulation through a thinnning of the cortical cells of the "anterior insula" in the brain. The Brain in Chronic CRPS Pain: Abnormal Gray-White Matter Interactions in Emotional and Autonomic Regions, Geha PY, Baliki MN, Harden RN, Bauer WR, Parrish TB, Apkarian AV, Neuron 2008;60:570-581, FREE FULL TEXT @ http://www.rsds.org/2/library/articl...aliki_etal.pdf As a reult, it much easier for us now to become emotionally overwhelmed. Now, add to that, we add the fact that roughly 2/3rds of us will lose some organizational abilities or "executive funtioning," a matter of particular consequence in dealing with mass disruption in our life. Neuropsychological deficits associated with Complex Regional Pain Syndrome, Libon DJ, Schwartzman RJ, Eppig J, Wambach D, Brahin E, Lee Peterlin B, Alexander G, Kalanuria A, J Int Neuropsychol Soc. 2010 May;16(3):566-73, Epub 2010 Mar 19, FREE FULL TEXT @ http://www.rsds.org/2/library/articl...ychol_2010.pdf Department of Neurology, Drexel University, College of Medicine, Philadelphia, PA 19102, USA. dlibon@Drexelmed.eduhttp://www.ncbi.nlm.nih.gov/pubmed/20298641 In other words, what would be a terribly upsetting experience for anyone is likely to be that much more challenging for someone with RSD, and that's before we get to issues how stress triggers pain! So, may I suggest that it is time time to take a breath and give yourself occasional unconditional "self love" - truly caring for yourself - because I truly believe it's only once that us underway that that we are in a position to fully give ourselves to those we love in their hour of need as well. Thinking of you and yours, Mike |
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