Oral Ketamine, heard of everything now!

dreambeliever128 · 07-08-2010, 07:14 PM

Lidocaine is the same way now that I think of it. My Gyno gave me the bottles of the lidocaine along with a syringe to put it into my bladder for my Interstital Cystitis. I no longer go to her and my PCP tried getting it for me and because he's not a specialist he can't get it. This was after he gave me a script for it and the pharmacy said they didn't carry it. She started out putting it in my bladder every time I went up there but to cut down on cost of office visits she started giving it to me to use at home.

It did help with my IC but I can't get it any more unless I go back to this gyno. I'm thinking the ketamine is basically the same in that aspect.

Kakimbo, your specialist may be able to keep getting it for you through his office.

Ada

gabbycakes · 07-09-2010, 06:31 AM

Quote:

Originally Posted by Kakimbo

Hi friends!

Last week my new PM infused Ketamine in my epidural along with Lidocane. I am just amazed at the immediate relief I got. Today he gave me a syringe with Ketamine to take at night for pain relief and to help me sleep.

I take another syringe (with no needle) and spray in on the roof of my mouth. He started with .5cc.

He also explained that NIH discourages the use of this for RSD pain. Why? Because they want to market newer meds that cost a fortune so hospitals can make a better profit! Also said that nerve blocks and other spinal injections are the safest and easiest procedures to do. It's not necessary to hospitalize and put the patient under sedation for nerve blocks. Again, more profits!

I'm sorry, but I feel that my health and pain relief are just a little more important than someone's profit margin. I feel like a lab rat at times. It disgusts me. Here we all are, horribly suffering. Alot of us have taken a huge hit to our pockets from this and our families are living in h*ll trying to understand and help us. Luckily for me, my RSD is a result of a w/c accident. If I didn't get hurt on the job, I wouldn't be able to pay for my treatment because I am unable to work. I feel very bad for those of you who have to scrape by just so you can get SOME relief.

I think it's unacceptable that doctors and drug companies are allowed (and even encouraged) to push unbelievably expensive procedures and meds on us. I mean, I've been at the ER and they give me a script for a $400.00 medicine. Then I try to get it filled and realize that I don't have nearly enough money to purchase it; only to call the doctor back and he prescribes another med that costs $10.00. I've had to borrow money (which is humiliating) just so I could get my daughter antibiotics. What's wrong with this picture?

I hope the oral Ketamine works. I will keep you posted!

I hope everyone has a great Fourth of July!

Kim

My heart truly goes out to all that suffer from this disorder and I also suffer and feel the same. I have done the ketamine route 3 - 5 day inpatient procedures w/ the usual booster protocal and yes I do feel it helped and has
keep the spread to a limit. But the long term side affects that I feel I have suffered from can be considered serious.

Taking it on a daily basis for who knows how long would scare me. I know how I felt doing it and how long it has taken me to feel myself outside of the RSD everyday battle. My last booster was in Jan 09. And I won't do it again.

Gabbycakes

dreambeliever128 · 07-09-2010, 10:43 PM

What were the side effects you dealt with? I would be interested in knowing. I will not do the ketamine I don't think, I have good options otherwise but people need to know some of the side effects. I think some have mentioned some of them before but I can't remember.

Unfortunetly with a lot of the meds we take there are long term side effects. I've learned that if the side effects seem to outweigh the benefits, quit taking it. Sometimes it's too little to late though.

Ada

Cricket183 · 07-10-2010, 11:54 AM

I was on oral ketamine for about 3 months. It was in capsule form. It has to be made by a compounding pharmacy. Unfortunately I did not find it to be very helpful in oral form or by IV infusion. I was so hoping it would work for me. The first series they did three days and the next two series they did five days of infusions. It helped during the infusions but they did not last very long beyond the initial infusion. Plus my insurance paid for the doctors fee and the monitoring but not the ketamine itself and it was very expensive.

Cricket

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