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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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07-08-2010, 07:14 PM | #11 | |||
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Magnate
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Lidocaine is the same way now that I think of it. My Gyno gave me the bottles of the lidocaine along with a syringe to put it into my bladder for my Interstital Cystitis. I no longer go to her and my PCP tried getting it for me and because he's not a specialist he can't get it. This was after he gave me a script for it and the pharmacy said they didn't carry it. She started out putting it in my bladder every time I went up there but to cut down on cost of office visits she started giving it to me to use at home.
It did help with my IC but I can't get it any more unless I go back to this gyno. I'm thinking the ketamine is basically the same in that aspect. Kakimbo, your specialist may be able to keep getting it for you through his office. Ada |
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"Thanks for this!" says: | Kakimbo (07-08-2010) |
07-09-2010, 06:31 AM | #12 | ||
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keep the spread to a limit. But the long term side affects that I feel I have suffered from can be considered serious. Taking it on a daily basis for who knows how long would scare me. I know how I felt doing it and how long it has taken me to feel myself outside of the RSD everyday battle. My last booster was in Jan 09. And I won't do it again. Gabbycakes |
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07-09-2010, 10:43 PM | #13 | |||
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Magnate
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What were the side effects you dealt with? I would be interested in knowing. I will not do the ketamine I don't think, I have good options otherwise but people need to know some of the side effects. I think some have mentioned some of them before but I can't remember.
Unfortunetly with a lot of the meds we take there are long term side effects. I've learned that if the side effects seem to outweigh the benefits, quit taking it. Sometimes it's too little to late though. Ada |
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"Thanks for this!" says: | Kakimbo (07-09-2010) |
07-10-2010, 11:54 AM | #14 | ||
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I was on oral ketamine for about 3 months. It was in capsule form. It has to be made by a compounding pharmacy. Unfortunately I did not find it to be very helpful in oral form or by IV infusion. I was so hoping it would work for me. The first series they did three days and the next two series they did five days of infusions. It helped during the infusions but they did not last very long beyond the initial infusion. Plus my insurance paid for the doctors fee and the monitoring but not the ketamine itself and it was very expensive.
Cricket |
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