I haven't been on for awhile. Last week was a rough week for me. My CFS kicked in and I had to go to bed for a couple of days to recoup. I actually went to the pharmacy to ask them to fill 2 prescriptions I had already had filled this month. The lady looked at me like I was on drugs. LOL Luckily I have been going there for years so they know me but I still feel like I need to explain to them what was going on with me.

What I wanted to ask though is how many of you deal with chest pain with the RSD? If I tell my Dr. I am dealing with chest pain, he would make me come in to see him ASAP. He just ran some test on me awhile back and did diagnose me with something to do with my breathing. I just get to the point where I am tired of bringing up the chest pain.

It's not something we talk about on here much but I know some do deal with it. When it runs down the arm and acts just like angina, how the heck does a person know what they are dealing with?

Thanks for the info.
Ada

Hi Ada,

It's good to hear from you. My Lindsay had chest pains for a long time, and Dr. Kirkpatrick said it was the RSD in her chest. Now she was only 15 at the time. You on the other hand need to go in and get that chest pain checked. We do not want anything to happen to you. What is one more test???? Please get checked my friend.

Sandy

Thanks for your concern.

I think I have this chest pain figured out. Our weather changed yesterday. We had a storm come in last night and it looks like rain today so I do believe it's causing my chest pain. It's really bad today. I am going to throw on a lidocaine patch to see if that helps.

I notice a lot of people don't seem to deal with the chest pain. My Dr. also said it was Costocondritis years ago too so I think I have a combination of things going on. It's just been quite for so long, now it decides to rear it's ugly head again.

I'll be 59 next month so I know I have to keep up with what's going on due to my age. It just gets to be too much to keep up with after awhile.

I hope your daughter is seeing some painfree days. I always hate to see the young ones go through this. I was 37 when I got sick and I thought that was too young but to see these kids get RSD is just heartbreaking to me.

Ada

Ada,

It is funny how you mention Costrocondritis, because that is what Lindsay's doctors said it was for about three years. Have you thought about seeing Dr. Schwartzman or Dr. Kirkpatrick. Because Kirkpatrick is the one that diagnosed the RSD in her chest and said it was not Costrocondritis...it had been the RSD all along. I hope you are feeling better my friend. I have you in my prayers. Let me know how you are feeling.

Much love,
Sandy

Hello Ada,

I know we get tiered of test. However, sometimes they are necessary. Not everything is related to our RSD/CRPS. You need to get an EKG its a simple test done in your doctors office. Error on the side of caution.

I have fullbody RSD and 3 years ago it started affecting my lungs. It causes chess pain, tightness, sharp pains in the chest wall and shortness of breath. I'm married to a 20year on the job paramedic. The first time it happened he rushed me to the ER. The anxiety of not knowing what was going on increased my heart rate added to my sysmtoms they were sure I was having a heart attack. Thank God I was not.
I have been a patient of Dr. S in Philly I called him and consulted with him. He confirmed what was happening was my RSD.
Even though I know what can happen. I see a cardiologist to have regular EKG's and a stress test. The dye injection for the stres test is awful because it is designed to create the feelings that RSD creates. When they start I concentrate on breathing through the pain. In through the nose and out through the mouth in a slow steady pattern

If you haven't had a stress test and EKG lately have it done. It will give you peace of mind and settle your anxiety. We all know what anxiety does to our pain level.
Take care and I hope you feel better soon
Sherrie