Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-07-2010, 01:50 PM #1
hurting hurting is offline
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hurting hurting is offline
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Default anyone had a SCS implanted with a severed nerve

Hi My PM Dr. wants to place a SCS even though I still have a severed radial nerve in my right arm/ hand. I have had 2 surgeries to try to fix my nerve without success. My PT had me try a TENS unit to help with the pain in my entire right arm, hand, and upper right side of my back. The TENS unit made my pain jump from a 8 to over 10+ after only using in 30 mins 2 times a day as told. I call my hand Dr. which told me to call the PH which told me to call the rep from the TENS unit company. She told me to stop using asap it and ship the unit back.

My concerns are that if a TENS unit can cause this much pain how much can a SCS do to me. My new PM Dr. only been see him since November 2009 wants to implant a SCS. My Hand Surgeon, PT, PM Dr. all say that I have the worst case of CRPS type II in the right hand and arm that they have every treated to date.

I am trying to fine someone with similar permanent nerve damage that had the SCS implanted with success or not.

Thanks for any help.
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Old 07-07-2010, 02:57 PM #2
Jimking Jimking is offline
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Jimking Jimking is offline
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Sorry to hear about your pain. There is a test first using the SCS before it's surgically implanted. Apparently they place a lead wire in your back first to see if you'll benefit. I believe it's around a 3 day trial.
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Old 07-07-2010, 04:22 PM #3
mom of 3 mom of 3 is offline
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mom of 3 mom of 3 is offline
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Quote:
Originally Posted by hurting View Post
Hi My PM Dr. wants to place a SCS even though I still have a severed radial nerve in my right arm/ hand. I have had 2 surgeries to try to fix my nerve without success. My PT had me try a TENS unit to help with the pain in my entire right arm, hand, and upper right side of my back. The TENS unit made my pain jump from a 8 to over 10+ after only using in 30 mins 2 times a day as told. I call my hand Dr. which told me to call the PH which told me to call the rep from the TENS unit company. She told me to stop using asap it and ship the unit back.

My concerns are that if a TENS unit can cause this much pain how much can a SCS do to me. My new PM Dr. only been see him since November 2009 wants to implant a SCS. My Hand Surgeon, PT, PM Dr. all say that I have the worst case of CRPS type II in the right hand and arm that they have every treated to date.

I am trying to fine someone with similar permanent nerve damage that had the SCS implanted with success or not.

Thanks for any help.
I had the SCS placed in Feb of this year, I wont lie it was very painful..the trial your awake for which is not comfortable but its only in for 3 days. when you go for the permenent surgery your asleep the pain from the inscisions are very sore for about a week but then you are pain free from the RSD it will take alot patience to get used to, mine is in both legs and im still learning everyday. I hope everything works out for you!! I wanted to be completly honest with you, I am very happy with my results. GOOD LUCK TO YOU and keep us posted!
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