[Mycah]

This came in the RSDSA newsletter today. Great video.

*****************
For Grace Earns Emmy Nomination

For Grace is thrilled to announce that a FOX Los Angeles news segment that For Grace championed has earned an Emmy nomination in the Medical catagory. This powerful five-minute segment, titled "Misdiagnosing Pain", highlights gender bias and Complex Regional Pain Syndrome (CRPS).

Here's a link to the Emmy-nominated news segment:
http://www.myfoxla.com/dpp/health/co...drome_20091109

Special thanks goes to For Grace spokesperson, Cynthia Toussaint, for pitching, generating, consulting and interviewing for the segment. And congratulations to Fox News producer Heidi Cuda for her courage to bring the true pain experience to light.

[Jimking]

Originally Posted by Mycah

This came in the RSDSA newsletter today. Great video.

*****************
For Grace Earns Emmy Nomination

For Grace is thrilled to announce that a FOX Los Angeles news segment that For Grace championed has earned an Emmy nomination in the Medical catagory. This powerful five-minute segment, titled "Misdiagnosing Pain", highlights gender bias and Complex Regional Pain Syndrome (CRPS).

Here's a link to the Emmy-nominated news segment:
http://www.myfoxla.com/dpp/health/co...drome_20091109

Special thanks goes to For Grace spokesperson, Cynthia Toussaint, for pitching, generating, consulting and interviewing for the segment. And congratulations to Fox News producer Heidi Cuda for her courage to bring the true pain experience to light.

I just received the email. What I heard in the video is RSD is not rare and infact millions have it. The figures I've read in the past was 200,000 to a million. I hope this is true because as time goes by RSD will receive more attention, finally.

[daylilyfan]

I don't agree with what the doctor says in this. He says there is a simple test to see if you have RSD. If a nerve block doesn't help you immediately you don't have RSD??? I bet there are many of us on here who could not do jumping jacks after getting a block done, and we DO have RSD...

I had blocks. Color changed, hand warmed up. Pain didn't change because by then I was SIP.

I find the limping girl who does jumping jacks after injection a little.... umm... I don't know. Disconcerting? Demeaning? Something about it bothers me.

[Jimking]

Originally Posted by daylilyfan

I don't agree with what the doctor says in this. He says there is a simple test to see if you have RSD. If a nerve block doesn't help you immediately you don't have RSD??? I bet there are many of us on here who could not do jumping jacks after getting a block done, and we DO have RSD...

I had blocks. Color changed, hand warmed up. Pain didn't change because by then I was SIP.

I find the limping girl who does jumping jacks after injection a little.... umm... I don't know. Disconcerting? Demeaning? Something about it bothers me.

You've got a point. It seems, however, that maybe youth and early diagnoses and treatment may bring on the jumping jacks, perhaps?

[SandyS]

My Lindsay had her first nerve block at 15, and she could not do jumping jacks after it... Her leg warmed up all the way to her foot, her color was normal but her pain was worse, she had muscle spasms. She was out of it. It took her several days to recover. So I am with the rest of you. She had three of these and each one was the same. So I don't think it has to do with the age and she was in stage 1, it was an early diagnosis. But, everyone is different. Hopefully, she is no longer in pain and is still doing jumping jacks, that's all I can hope for, especially for how young she is.
What great exposure!

Sandy

Originally Posted by Jimking

You've got a point. It seems, however, that maybe youth and early diagnoses and treatment may bring on the jumping jacks, perhaps?

[dreambeliever128]

I notice he didn't mention surgeries could bring on RSD.

i am thinking the dancer may just be in remission and she could be on meds that give her a feeling that she is doing better. The Methadone can do that. I can do more when I take it then when I'm not on it.

I wonder too if she worries about reinjury or injuries elsewhere. I try and watch what I do anymore but falling seems to be my knack.

We try to do things that we want to do and we sometimes end up worse for the wear.

I had a psych evaluation by a Psychologist for a PM Dr. and he still wouldn't see me again even after the Psych said I was ok to take meds.

Maybe they did catch hers soon enough that it is in remission and God willing will stay for her.

Ada

[Jimking]

Originally Posted by dreambeliever128

I notice he didn't mention surgeries could bring on RSD.

i am thinking the dancer may just be in remission and she could be on meds that give her a feeling that she is doing better. The Methadone can do that. I can do more when I take it then when I'm not on it.

I wonder too if she worries about reinjury or injuries elsewhere. I try and watch what I do anymore but falling seems to be my knack.

We try to do things that we want to do and we sometimes end up worse for the wear.

I had a psych evaluation by a Psychologist for a PM Dr. and he still wouldn't see me again even after the Psych said I was ok to take meds.

Maybe they did catch hers soon enough that it is in remission and God willing will stay for her.

Ada

He more or less thought you a nut, then proceeded to insist you see a psychologist who said you were fine then added insult to injury by not seeing you? I'd post a complaint on this person or give'em an earful.

[Jimking]

Originally Posted by Jimking

He more or less thought you a nut, then proceeded to insist you see a psychologist who said you were fine then added insult to injury by not seeing you? I'd post a complaint on this person or give'em an earful.

I don't mean to come off as though anyone seeing a psychologist is a nut, heck I'm ready to see one! I'm just curious as to how someone with RSD will handle pain any better with a psychological issue than those without. Perhaps it's to protect the doctor, I'm sure. But, then to ignore that person in pain who's psychological issues arose because of the neglect from the medical field over a long period of time is an abomination as far as I'm concerned.

[dreambeliever128]

I wondered about why he didn't see me again. I did call the Psychologist and he couldn't understand his reasoning for sending me to him and then refusing to see me again.

I wondered back then if I were in so much pain that the Drs. did think I was nuts. I was very suicdial from the pain. I hear that from others who are in such pain.

I got such shoddy treatment when I first started out with this due to how it was effecting me mentally. Had it not been for my PCP stepping up to the plate, I most likely would have ended it.

I still believe these Drs. know that they have to stick with us if they start giving us narcotics or long term treatments for the RSD so they don't want to start. It's a long road and most of them don't want to travel it.

I never had any good luck with PM Drs. nor Neurologist in dealing with the RSD. As far as a one treatment plan, I don't really think one treatment for RSD is the answer as some do.

My Dr. saw me weekly for 10 years and sometimes more if he felt he needed to. I can still get in on a call if I need to. He believed me and fought the fight with me.

You're right, the Psychological issues rose from the pain. Now that we have the pain somewhat under control I do better mentally. Had it not been for councelling to talk me through what I was going through I would not be here today.

Ada

[Jimking]

Ada, my wife's gone through exactly what you have. She tried to do it alone with no luck. With her shyness she would drop hints to me and being a guy it took sometime for me to get it. Once I did I now fight for her constantly. No, all doctors where no good to her and didn't like her, just the one she has now which wouldn't treat her if I wasn't around and it disturbs me to no end. My wife absolutely freaks out when someone questions her mental capacity, has been told to see a shrink several times because of her pain and her association with incidents that equate to bad pain, but doctors don't understand. One thing that hurts her is handling paper, why? She worked for 4 years with RSD doing office work. The handling of paper overtime hurt her badly but when she explains to the doc this paper pain thing they think she's a nut. She has steadfastly refused to see a psychologist and its hurt her.