Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 02-06-2007, 10:15 PM #1
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Oh Lil....I feel for you......

Could you please send me a private message and set it up so that I can ask you a few questions. I have some experience in the Workers Comp area and might be able to help.

Both my husbands injuries and thus the RSD conditions were/are work related. A lot of times people who are suffering dont know where or how to look for information regarding laws, etc.

Give me a hollar
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Old 02-07-2007, 03:39 PM #2
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Lil, I hope you know you are not alone in this fight..it sounds like that every one just wants to help you not like you are a burden to anyone. Stay strong I'm in Mo. also I hope you see all the people who care..
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Old 02-07-2007, 05:21 PM #3
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Thank you everyone vicc and abaski and hubby I just know it will all work out for us right. I know my spelling is crazy and all nevre been my best subject when I was younger, I should have done better mabey I would have not ended up working in a factory. I think I got a lawyer who just wanted to get rid of me and my case he said it was complicated and would be hard I say I wish I knew now what I did not know then I would have done better in my case vicc but I thought the lawyer knew it all and I did what he wanted everyone never fully trust your lawyer unless you got a good one like you did vicc.
I'am in the southern part of MO. near the Arkansas border alot of hills some people call them mountains I guess they where way back when, know just hills that go rolling on and on. My case setteld a while back I guess I just was ignorant to it all and was taken advantage of so I live with the help of aid I get from state and goverment not much but I get by in a small town I see your point about not being a burden but it is the old german part that comes out growing up in the hills here we where taught to be self relient and fend for ourselves it was rough. A farm in the hills was hard work alot of rocks and clay here not much but we got by when I was young my parents always gave to us youngsters oh I'm drifting I do that alot I drift back to a much simple time alot lately I think cause my pain pills and such I get foggy brain I call it, sorry I'am a old women who just will talk your ears off if I get a chance.
I will save some for my neighbors who come by tonite to help me with fire wood I have heat but I use my pot belly stove so my bills are less I know I'm country as you can get
Thank you all, lil
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Old 02-07-2007, 06:08 PM #4
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dear lil....my name is linda & i know exactly how you feel..i am so so so sorry...this disease has affected so many people's life..it has ruined mine.. i was also injured at work and having a difficult time doing just about everything except screaming and crying and feeling like a failure...i started going to a rsd support group (thanks to debbie) and i was amazed that i did actually talk about what i am going thru...i usually keep my problems and pain to myself...but thanks to the wonderful people here i have gotten the courage to discuss my pain...knowing that they understand what i am going thru..some days i am stronger than others..today is not one of them...but wanted to welcome you and lend my support...ventiing my anxiety,pain,and all my losses helps so much...feel free to talk,write or send private messages to me if you need to.
i have not settled my case yet..still trying to work 6 hours a day..but haven't been able to function since dec . si i know all about the $$$ worries..posting here makes me feel not so alone..and supporting others gives me a reason to keep on fighting...welcome.... moonstar (linda)
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Old 02-08-2007, 08:38 AM #5
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Quote:
Originally Posted by lilly View Post
I have heat but I use my pot belly stove so my bills are less I know I'm country as you can get
Thank you all, lil
A pot belly stove! That is wayyyy kewl! I think those are just the neatest things!

I remember when I was a kid I used to have to haul wood - YIKES! Glad we have natural gas although I live in the boonies too
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Old 02-08-2007, 11:04 AM #6
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Quote:
I now have to rely on my church and others for help, I have a nice couple next door who go to my church and give me rides there, they came over a week ago and put up plastic on my windows since they rattle they said and cold air comes in, also they came by and help me get my fire wood in my house and on my porch, I thank them so much for helping me. I have meals on wheels come by and I talk to them awhile, also have to go to Saint Louis for treatments and have people at my church take me there it is such a long ride to get help. I feel like I owe everyone for helping me, like I am no use and cant do anything for myself anymore without help. I had people come by from church the young kids this past summer and paint my outside of my house since it looked so bad, I feel like I’m the town charity case they got me this computer to help so I don’t feel so alone. I hope to talk with others in Missouri too. I have RSD and was once self reliant and did things now I’m no use, I hope I can be on your board with you I just do not want to be a Burdon any more.
Lil, I think all of us go thru those times where we feel like you do - that we are a burden to our friends, neighbors and those we love. That we are "no use" and we feel alone, etc.

But when I read your post, know what I saw? I picked out these words just from your original post:


friends (most people have "acquaintences" - but you have "friends!" That's very very special!)
the Ozarks (how I'd love to see the Ozarks!)
small towns (I live in one now and LOVE it!)
church (A wonderful place to belong!)
help from others (some people have trouble getting help..be thankful, hon)
nice couple next door (you're blessed. I've moved several times cuz of awful neighbors!)
young kids who painted your house for you (you actually got teenagers to do something GOOD for you? Oh MY!)
people who cared enough to get you the computer (how beautiful a gesture is that????)


I think, from reading that, you have truly, truly been blessed.

And if you believe you are a burden, I beg to differ. When people are kindhearted, and WANT to help, their joy comes in helping people. Therefore, you are actually brining people joy...rather than being a burden to them. And, honestly, it sounds as though you are WONDERFUL company, Lil. And just being there to talk to, to hang out with, to have coffee with on a cold day is probably what some of these people cherish and look forward to.

So don't think you are a burden to them. I'm sure if they thought you were, they wouldn't be helping you with these things. I've found that those who feel that way, usually help a couple of times, and then stop. They don't continue to help.

So be still in your heart, Lil, and know peacefully that you surely aren't burdening these wonderful people who are so thoughtful and generous. They are obviously doing it for reason other than pity or charity or selfishness. They are doing it because they want to...and out of love.

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Visit My Message Board - Helping Custodial Parents Collect Child Support From Deadbeats for 7 Years
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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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Old 02-08-2007, 11:54 AM #7
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first of all, welcome lil, and you are not a burden..................
you are fortunate to have so many wonderful people in your life to help you.

lisam....your post says it all...you have such a wonderful way of writing..............
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