"I started having floaters in my right eye and I would get a pain above the right eye that would just kill me. My head would go numb, my left side would go numb. I would get tingles in my fingers and toes on both side of my body. My body would sting...like bee stings. It hurts to were clothes some time. It hurts to take a shower. The water beating on me hurts. Temperature is very confusing. Sometimes cold hurts, sometimes hot hurts. So lukewarm is usually were I keep it."


I posted this on another board and Jo55 thought I should post here. Thank you for your insight. I went and read a little about RSD. I found a lot of information that fits my symptoms, but then some that don't. But if there is one thing that I have learned that is not everyone has every symptom. But the range of motion one kind of confuses me. I hurt all over which is why I am guessing that they dx me with FM. I have seizures which I didn't see as part of RSD, but that could be genetic for my father has ES. But it is often after these seizures that I get the bee sting feelings and skin that hurts. Don't know if someone can help with a possible connection or not. Any words of wisdom helps.

My skin often changes colors. Red to redish purple to blueish purple. I sweat at night (which I often attribute to hot flashes from the hysterectomy I had 4 years ago), but then I freeze and need an electric blanket, then get hot. Showers are terrible as I had stated. Baths not much better.

I had many injuries growing up as a child. But this all started after I had my hysterectomy in June of 04. One thing comes to mind with that. After that, I had a problem urinating. My gyn told me that he may have "bothered" a nerve while doing the procedure, but that it would get better in time. I still have a small problem at times urinating, but not like it was in the beginning. I don't have any swelling or redness at this site, nor at any other injury site that I can think of. I do have two large "water pockets" my doctor calls them at injury sites. They don't hurt. They are just full of water. They are at my right knee which I broke at age 9 and at my waist line above my belly button, not an injury site. Not sure why it stores up there, but the doctor says that it isn't dangerous and there is no reason to drain them. Any thing you can think of here? Could this be a symptom of RSD?

Any help would be appreciated and thank you for responding.

M

Hi,

Well, yes, you've got a real old mixture of symptoms there. Some we get with RSD; there was a thread quite recently which may help a little, it's here:
http://neurotalk.psychcentral.com/sh...ad.php?t=12109

There really are quite a lot of things which produce similar symptoms. The stinging sounds like what I get with RSD, sometimes a burning, but in the last year it's more often like an internal bad sting with bright streaks of pain and cccasional nerve zaps (almost like an electric joke zapper turned too high)....also the discoloration is common. Seizures, though, don't go with it, but muscle spasms do. Hypersensitivity is the hallmark of this monster, but other conditions cause that too. Floaters I get - but the meds cause that. Swelling we get, but pockets of water, no idea.

So yeah, you got a mixed bag there. Better go see the doc, you may have a couple of different things going on, maybe more.....in the meantime, try reading up on desensitisation PT; a lot of that treatment, usually done in PT, you can do from home. It would be a first step in making yourself more comfortable at least.

Good luck, I hope you discover the cause soon, take care,
all the best