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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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#1 | |||
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Magnate
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I had a flare to my arm around easter time and ever since then I have been passing out on a regular basis
Its happening around 3pm for a few times and the stops till around 8pm when it gets more regualr and lasts right up to going to sleep Each time I pass out I'm out between a minute and anything up to ten and when I come round I have no recollection of anything thats happened Its ended up that I have hurt my head banginging it against the car window and then around three weeks ago I hurt my back really bad My back has now developed a large swelling and lesion which neither my own consultant or a spinal consultant can find any reason for They are now saying that the lump and lesion may be due to how my CRPS is reacting to the injury - great its in my back now :-( Its not healing because I continue to hurt it when I pass out but no-one has any ideas on why thats happening either I was due to undergo trials or a baclofen pump in the near future and nothing else seems to work pain-wise. Now thats been shelved because of my back problems so I'm in a really bad place at the moment I was just wondering if any of you out there had experienced similar problems with your back or passing out and if you had any suggestions as to something which may help Thanks Alison x
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"Thanks for this!" says: | Abbie (07-26-2010), dreambeliever128 (07-25-2010) |
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#2 | ||
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Junior Member
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Ali , That has to be awful scary ... have you changed any of your meds lately ? I know I had a similar issue sev. yrs ago and it turned out to be one of the antidepresents they had me on . Not sure which one (brain fog) , but when I weaned myself off ,that problem went away . mine came on and felt like a very sudden (within seconds) drowsiness and I would pass out/fall asleep mid sentence of talking with someone or whatever I was doing , and would awake unaware of anything I missed . I usually would have a second or two to react and I would make sure to position myself not to hurt myself . Good luck and take care !
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"Thanks for this!" says: |
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#3 | ||
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I had that too. I would pass out and get these jerks when I woke up. My dr told me it was because my body was so exhausted it would get into a state of "relaxation" even though it doesnt feel like it, and then I subconsiously wake up with a bad shake. Its so scary not remembering what happens. I would be in the middle of a sentence and id fade away and when I came awake again I had no recollection of what happened. I was on heavy narcotics after a surgery plus neurontin, baclofen, tramadol, etc plus the others. Its scary. What meds are you taking right now??
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#4 | |||
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Co-Administrator
Community Support Team
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Is the passing out due to high pain levels - or is there some other possible cause for it?
Head hitting things - can cause the c1 & c2 to get out of alignment which can start up various troubles. {called Upper cervical/ atlas/axis} some info links- Chiropractic care info- a good one can help with many symptoms: http://www.upcspine.com/self.htm http://www.uppercervical.org/subpag...b/about_faq.php http://www.spineuniverse.com/index.html http://www.coloradochiropractic.org/.../glossary.html
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#5 | ||
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Ali, So sorry for your battle with this monster. I had the passing out problem when I was prescribed Nuerontin. I had taken it for a little while before the passing out started. I pray that your problem may be as simple as just finding out this may be caused by a drug reaction. Best wishes, Lisa
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"Thanks for this!" says: | Abbie (07-26-2010) |
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#6 | |||
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Magnate
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Thanks for replying everyone
I don't think the passing out is medication related The only medication I was taking when all this started was ketamine because nothing else works for me and I have been taking ket for well over a year I tend to think its just another problem associated to the RSD When I was in GOSH a couple of years ago my therapist told me about a girl who used to pass out regularyl because of the pain so I guess thats what might be happening here My consultant hasn't come accross it before and is going to look into it - he wasnt overly worried until it resulted in this back injury Its now difficult to plan my life round it because I can't risk being out when the collapsing starts Alison x
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To the World you may be one person, but to one person, you may be the World. |
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"Thanks for this!" says: | Abbie (07-26-2010), dreambeliever128 (07-25-2010) |
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#7 | |||
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Member
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Hi Ali,
Just to let you know I PM'd you about passing out - it's something that's been happening to me for years. It is really annoying and frustrating, but what isn't with this disease? Pain free hugs and understanding!! Rosie xxxx
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It's always darkest just before dawn... but smile and the world smiles with you, cry and you cry alone |
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