Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-03-2010, 10:27 PM #1
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cindi1965 cindi1965 is offline
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Originally Posted by buppy911 View Post
how is an emg done? I've heard that they stick you with needles and it is very painful. I need to get one as well...is this true?
I don't want to scare you, but my EMG was one of the worst experiences of my life. On the day that I had it my leg was really dry and scaly, so the adhesive to the electrodes wouldn't stick and they came out with a inconclusive results...the next one was still inconclusive and I refused to have a third one. It hurt soooo bad and you could just look at my leg and see the mottling and swelling, hair growth..the whole nine yards.....

I got my diagnosis by process of elimination because I was born with Cerebral Palsy and they thought all the symptoms came from that. My RSD started after a bout with a serious internal MRSA infection. It took over a year and a half and about 5 neurologists until my PM doc just tooj one look and said beyond a doubt I had RSD. I was treated like crap until I found him and and he works along side of my GP and they are starting to get it right after 2 years. I am in the process of getting SSDI and I am waiting for my date for the judge.

In the meantime while trying to get my diagnosis my RSD has been spreading, so each appt for SSDI I have a new symptom....I almost have my med "cocktail" figured out so that I can function as a wife and mother and a new grandma. This is the only thing that I have been asking for. I know that I can't work my job as an autism mentor, which I have been doing for 24 years, but I try to stay positive and try to find out what it is that will make me learn to live with this crazy disorder.

Good Luck with the EMG and I hope it goes better than mine
God Bless,
Cindi
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Sandel (08-07-2010)
Old 08-03-2010, 10:59 PM #2
Dubious Dubious is offline
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Quote:
Originally Posted by cindi1965 View Post
I don't want to scare you, but my EMG was one of the worst experiences of my life. On the day that I had it my leg was really dry and scaly, so the adhesive to the electrodes wouldn't stick and they came out with a inconclusive results...the next one was still inconclusive and I refused to have a third one. It hurt soooo bad and you could just look at my leg and see the mottling and swelling, hair growth..the whole nine yards.....

I got my diagnosis by process of elimination because I was born with Cerebral Palsy and they thought all the symptoms came from that. My RSD started after a bout with a serious internal MRSA infection. It took over a year and a half and about 5 neurologists until my PM doc just tooj one look and said beyond a doubt I had RSD. I was treated like crap until I found him and and he works along side of my GP and they are starting to get it right after 2 years. I am in the process of getting SSDI and I am waiting for my date for the judge.

In the meantime while trying to get my diagnosis my RSD has been spreading, so each appt for SSDI I have a new symptom....I almost have my med "cocktail" figured out so that I can function as a wife and mother and a new grandma. This is the only thing that I have been asking for. I know that I can't work my job as an autism mentor, which I have been doing for 24 years, but I try to stay positive and try to find out what it is that will make me learn to live with this crazy disorder.

Good Luck with the EMG and I hope it goes better than mine
God Bless,
Cindi

My CRPS was as result of a shoulder arthroscopy and resultant brachial plexus damage. Numerous issues resulted, one of which was near anesthesia of much of my affected shoulder, arm and hand. I couldn't feel most of both of my EMG's and over several areas, didn't even know when the neurologist put in and took out the needles! Weird.

Anyway, good luck!
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