Allen, what did you do to that poor thing?????

The rudest people I don't like, are those who KNOW you are coming in the door right behind them, and they just walk in and let the door go. That happened to me at the gas station this morning and you get so used to people holding the door until you get there to take it, that you aren't prepared for the one in a million who let it go. This "gentleman" just let it go, and I just about busted my face on the door! LOL!

And wouldn't you know it, he and I BOTH needed coffee refills, so we were both standing at the coffee station next to each other. Did he think, perhaps, that I was going to drink it all up so there'd be none left for him????

He was wearing a scarf, and I felt like tucking it into the little swinging trash lid that was between us when he wasn't looking, so when he turned to walk away, he'd be suddenly stopped and jerked off balance,
coffee flying everywhere, and land on his rear.
But then I figured that would make me just as rude as him.

It was a way to kill time on my hour and a half ride to work though...imaging the different manners in which he would have fallen, the different looks on his face...kind of in a cartoon way, ya know. I take my evilness out in my head, that way it's not taken out in person or in public. LOL!

I have ever owned! That little hairless has bit more people than my lab, chow, and any other dog I have ever owned. You gotta watch your toes around her LOL

The little ankle biter makes everyone run in fear! It is soooo funny watching grown people panic at this puny little dog. All you have to do is face her, and she will back off, but if you run, oh my she gets ferocious!

LOL!!!

What frustrates me is when, for example, I can't run to keep up with people, they go "Come on, slow poke!" When I explain that it hurts to run (walk....stand.....exist), they say, "Well, you look fine." or "You could walk yesterday." or..my favorite...."If it hurts, why aren't you in a wheelchair?"

Argh!!

(BTW - I'm new to the boards, and I promise I won't complain all of the time, but I really loved reading this thread! Somehow, it made me feel so much better! )

Thanks for the ideals on the jar opening. Another ways works sometimes is to turn the jar upside down on the burner of the stove and heat it a little and it pops off sometimes, not always though.

I really get stressed when I can't open something. Like chip bags, or other bags that are suppose to pop open when you pull on them. I keep a pair of sissors in the kitchen now for bags I can't open.

As far as the doors. I can't believe how hard they make some of the doors open. You can't even pull them open. I find it hard to believe Goodwill stores have doors that we can't open. I complained at a tire shop once and they fixed to open easier.

People are ruder nowadays. I always say I'm from the old school where you were taught to treat people as you want to be treated. That is not the case nowadays. Not even in department or grocery stores.


Another pet peeve of mine is people playing favortisim. I hate that wheather it's in a family, job or a group. I came from a family of ten and I saw less favortism in my family then in the modern families of 2 or 3 kids. I hate to see people favor one kid over another or one employee over another. I don't get it.

Ada
Ada

People think too much that if you look fine you must be doing fine! Argh... If only they knew the pain! It is hard for anyone to understand (not here!) what it is like to live in pain 24/7. Well, they think if you look fine, you must BE fine. Not at all. I DON'T WANT to LOOK sick or un-well. I want to look good. Even if I don't feel well!

Totally IHH./ broadway babe.....

I hate that "but you look so much better"

.........Unfortunatly you managed to miss the fact that I was up all night, had tears this morning and then decided to try and hide the pain because I want to try and get on with my life. They don't realise that just because you wear makeup or try to dress in more that jump suits it doesn't mean that it doesnt hurt. just cos I don't scream it doesn't mean that I don't need to.

Love

Rosie xxxxxxxxxxxxx

Thanks.

Yeah... people don't see me crying my eyes out on a HORRIBLE day (well, my therapists and family do)... or crying in the middle of the night, getting no sleep because of the pain, etc, etc, etc. No one knows who isn't you; other than fellow RSD'ers.

Of course. We want to look "normal" even though we never feel it.

Sometimes people have good intentions and really do care. So try and remember that. Even though it makes me crazy when people try and offer their advice, try and tell me that they "tore a muscle" and know the pain... etc...

The other day a man at the PT place I go to told me that he understood... and he was telling me about his stiff/ frozen shoulder... and that he had been coming to PT for 3 WEEKS. (And I have gone for 4 months so far...).

I try to just laugh... so I don't scream. Between the pain, no sleep, the comments, etc...

Well intentioned people. Try to not let them get the best of you. They don't understand; they can't; they may never! They think they do... let them think so!



Hugs to you all!

Hey IHH

Sorry it's just one of those days where nothing anyone can say will make me feel better - I'm just fed up with this.

Usually I'm ok - I have the possy, I have my other mates etc etc but I just want to be normal - I'm fed up of not being able to do anything. Fed up with deterioating, fed up with always being too tired, in too much pain, unable to focus or think. Fed up that I can barely move anyway and am losing even more movement now. Fed up that no one is ever going to understand what I live with, fed up that one of the boys touched my leg and it still feels like it is going to kill me, fed up that because he forgot the level of pain I (we) live with every day because i don't look like i'm in pain I will spend the rest of the night in tears. And then I will be expected to get up again and be "normal" and "happy" and repair the make up and pretend the pain doesn't exist again.

I know my mates care..... I just don't know how to accept their care. I don't want pity. I WANT to be NORMAL...... I know they try the best they can to empathise with me, to understand what it is to live in my life.... a place where your body screams silently 24/7, where freedom is pretty much reliant on your peripheral vision and your imagination....

Oh well.. tomorrow is another day!

Love

Rosie xxxxxx

Well for me it is the doctors. I wouldnt even be in this predicament if it wasnt for the stoopid doctor mistake, and all he said was ooop's! After he denied everything, then cussed me real good.

Then all the others that followed kept telling me there was nothing wrong, it is all in my head!!

After 4 years, and a few doctors, finally one tells me " has anyone ever told you your disabled? " That is when I found out it is RSD! Just a little late to do anything about it!

Here lately they decide not to accept my insurance, and I spend a month in withdrawals. Now that is over, the pain is back with a vengeance, and I am looking for a doctor that wont fall asleep on me!!! Snoring from a doctor is soooooo rude!!

After dealing with all the freakin stoooopid doctors, people cant even get close to my hot buttons cause I know they dont know any better. I guess neither do the doctors