I realize sleeping is an issue for if not all of us at least most of us , my question is does anyone else have their symptoms exacerbate while sleeping ? I have the increased perspiration through out the day , however when I fall asleep I awaken literally drenched from head to toe on the effected side , also the hypersensitivity is markedly increased and it seems the increased burning sensation is what wakes me . One more question is the sleep itself (or lack of) though I feel like crud when I first wake up I feel like I probably had slept for a couple of hours minimum only to find it was only 30 or so minutes . These may be the norm for this crazy stuff but even though I have been fighting it for over 10 years I am still learning....Hope all are doing well and take care !

I have the same problem.... Trying to sleep no matter what I do I can not sleep very long at a time. I wake up sweating and in severe pain and take another pain pill....I work 8 hours a day and feel sleepy all day.. Need some help......

Hi, I have been sleeping much better since starting Lyrica along with my other meds. I no longer wake up in agony or drenched with sweat. Some medications will cause increased sweating at night. You might want to contact Mrs. D about that since she is so knowlegable about drugs and supplements. I also remember a thread earlier this year that was about this. Lisa

Just curious if any of you tried Elavil. I had all of the same problems until I started taking about 65mg per night of that along with Tryptophan. Another Dr prescriibed Noritriptyline but I've been so happy with the Elavil that I didn't want to switch.

I do still have my occassional sleepless nights or ones where I felt like I never really slept well but overall, I've seen an approvement.

Dawn

I consider Elavil and Nortriptyline pretty interchangable. Very similar MOA

Has anyone had any luck with Melatonin ?

I had trouble with the Elavil. It can cause heart problems, and this is an off-label side effect. I was also told that this is not a good drug choice for long-term use by my PC doc. I know that it works well for some people and it actually worked for me until the heart problems. Lisa

I was taking 5 melatonin per night along with Tryptophan, klonopin. advil/tylenol PM plus my pain meds.

While the meltatonin plus tryptophan did help me fall asleep, I would inevitably wake up within 3 hours drenched in sweat and in horrible pain. Usually it would then be dawn before I could fall asleep again.

I do think it's worth trying if you're at a different stage but if you're in a flare, I'm afraid it's fairly useless.

It was an ER doc that suggested I switch to Noriptriptyline {sp} which I didn't do only because the Elavil at 75 mg has really helped me sleep (and gain weight).

Yes my sleep is horrid and my pain gets very bad at night. I have tried multiple meds for assistance but nothing helps. The other morning I was crying from lack of sleep,pain,frustration. Though it has not helped me sleep serequel has helped my friend with rsd. Also not for pain but trazadone helps some.
Red I am not sure how often you are taking tylenol pm but nightly I thought that was not good for the liver?

Daniella,

I only took the tylenol or Advil PM back before I knew I had RSD when I thought it was still ust botched spinal surgeries.

At this point, I do take Toradol but other then that, very little NSAIDS or tylenol preps. I have taken Trazodone a few times for sleep and found if only used once in a while, it works very well. Not one I'd want to use on a regular basis tho due to side effects.