Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 08-10-2010, 09:13 AM #11
Neoplasm Neoplasm is offline
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Thanks for responses.

I don't know what I'm going to do. I have an appointment with an ophthalmologist next week, but I'm 99.99% sure he won't find anything. It seems likely to be some problem at the level of the brain rather than intraocular. He'll probably tell me just be patient...or to just learn to live with it. MY EYESIGHT WAS PERFECT (WITH GLASSES) UNTIL LAST MONTH. IT'S A BIG DEAL! Same with cognitive slowing/memory problems. I had taken the year off college due to problems with my hands. And not only are they no better, they are actually worse than they were when I took the year out. I was trying to pull myself together to try and cope/deal with this (and doing a fairly lousy job of it), and now, a month before I'm due to restart college.. I'm having problems with my vision.

I think it's disgusting that the side effects of drugs (particularly ones that affect the brain) are not studied better. The assumption should surely be that they do cause damage, until proven otherwise. I realise that there are different phases of testing that drugs go through, but they are relatively small. And they generally only pick up incredibly blatant sideeffects!

What's the excuse for not doing larger scale studies of (at the very least) the more commonly prescribed neurotropic drugs? Probably because once they are legally prescribable, the funding drug companies don't want to focus on studies which demonstrate the sideeffects.

Sorry for the ugly selfpitying posts.
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Old 08-12-2010, 08:02 AM #12
Jimking Jimking is offline
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Any drug advertised on TV as an anti-depressant and warns the viewer there maybe suicide thoughts as a side effect from this drug and on top of it all there's a doctor who's convicted of falsifying lab results on said drug and a spouse who had very bad side effects from it means to me this drug needs to be scrutinized much closer especially if doctors accuse the patient in their medical records of not co-operating with treatment because they refused to take this drug. However, you really can't argue the fact if it really helps individuals.............
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Old 08-15-2010, 12:22 PM #13
Neoplasm Neoplasm is offline
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Eyes are still no better. Memory and general cognition also no better. Don't really know what to do from here. I wish I had a shotgun so I could kill myself. I also wish there was a way you could bring that up with your doctor without being forced into psychiatric care.
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Old 08-15-2010, 07:02 PM #14
Lisa in Ohio Lisa in Ohio is offline
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It does get their attention.
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