Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Reply
 
Thread Tools Display Modes
Old 10-17-2010, 09:01 PM #1
Dubious Dubious is offline
Member
 
Join Date: Jan 2009
Location: Paradise
Posts: 855
15 yr Member
Dubious Dubious is offline
Member
 
Join Date: Jan 2009
Location: Paradise
Posts: 855
15 yr Member
Default

Screw em all. None of them are worth a darn if they will not prescribe what you know you need. They are mandated to treat "pain" now, but get hassled for writing scrips for class III and IV meds by the feds. Still, you lose, but you already lost their vote.

File a complaint with their medical state boards for patient abandonment and practicing below the standard of care by not treating your "pain." It has it's own ICD-9.
Dubious is offline   Reply With QuoteReply With Quote
Old 10-15-2010, 08:46 PM #2
bigsav32 bigsav32 is offline
Junior Member
 
Join Date: Oct 2010
Posts: 24
10 yr Member
bigsav32 bigsav32 is offline
Junior Member
 
Join Date: Oct 2010
Posts: 24
10 yr Member
Default

Quote:
Originally Posted by vannafeelbettr View Post
Hi all! I suffer from Thoracic Outlet Syndrome, Lumbar RSD, Left Lower Extremity Radiculopathy, and both cervical and lumbar stenosis (several herniated discs). Had this problem 3 years now from a car accident. I have both a cervical and lumbar Spinal Cord Neurostimulators that work wonders for me and I'm very pleased with them. My problem lies in when my RSD flares up and the stimulators do not work with the burning sensation on the skin's surface. I need pain meds to take care of that.

So, the bigger problem.... getting the pain meds. My Pain Management Doc (who performed the stim procedures) told me to get them prescribed by my Primary Doctor (as he does not want to be bothered with appointments for minor stuff). I'd been getting them prescribed by my Primary Doc, who then told me she does not want to prescribe them for me anymore because it is a Pain Management Doctor who should do so (I agree with her). Then I go back to my Pain Management Doctor, who wants to perform more blocks and ketamine treatments instead of giving me meds -- don't get me wrong, I love the blocks and ketamine...just don't last and I cannot afford them. PM Doc tells me the pain meds are not good in the long run and refusues to prescribe, continues to push procedures (more $ in his pocket, I know). I'd hate to leave my PM doctor, he does wonders for me when I need my stimulator programs adjusted, and is a genius when it comes to RSD. I know if I switched to another PM, records would have to be sent and if my current PM doctor knew he'd be MAD (he's got quite a temper). Been 4 months now with no pain meds and am going through a torturous flare with RSD

Anyone else have similar experience? If so, how did you handle it??

Gentle hugs Vanna
i know its late but what saved me was being a veteran,no more private docs, for me seems they could care less
bigsav32 is offline   Reply With QuoteReply With Quote
Old 10-15-2010, 10:43 PM #3
Rrae's Avatar
Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Default Oh Vanna

I am so sorry you are in this predicament! This angers me very much!
I can not believe this!!
You have a VERY serious condition, of which you have vested in getting TWO SCS's - and this Dr won't even lift his pinky to write out a script for your BT pain, yet his pockets have been VERY generously lined with $$. Yes he may be very skilled, but this goes beyond arrogance.......this crosses over in to laziness, GREEED and NEGLECT.
This makes me absolutely SICK.
I don't know what to say.
I'm just so sorry.

My Dr who did my implant sounds VERY similar to yours, and yes I guess I can understand that he's very busy doing his high-end procedures - but he should at least have a specialist of some sort to take care of this so-called 'little' stuff...which in reality isn't 'little' whatsoever - this is our quality of LIFE we are talking about. You aren't getting any follow-thru healthcare on procedures that target very serious pain conditions. Unbelievable.

Something just isn't right with this picture.
You should NOT have to be in this situation.
Rrae is offline   Reply With QuoteReply With Quote
Old 10-16-2010, 06:47 PM #4
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
Default

I am a patient at the pain clinic of the hospital my PCP is affiliated with. The way they explained it to me at the pain clinic was that those docs do not write for pain meds because there were too many problems with patients calling in after hours for pain meds, bugging the on call anesthesiologists who were doing surgeries, etc.

I'm now playing the WC waiting game waiting for insurance approval to be seen at a different pain clinic that will write recommendations to my PCP who will then write the scripts for narcotics.

My neurologist has been writing for my Vicodin, but my regular health insurance that pays for my meds has dropped him, so currently I am private paying but I can't afford to keep paying $105 a month just for that med.
__________________

.


Gee, this looks like a great place to sit and have a picnic with my yummy bone !
finz is offline   Reply With QuoteReply With Quote
Old 10-16-2010, 10:57 PM #5
Lisa in Ohio Lisa in Ohio is offline
Member
 
Join Date: Mar 2010
Location: Forest, Ohio
Posts: 379
15 yr Member
Lisa in Ohio Lisa in Ohio is offline
Member
 
Join Date: Mar 2010
Location: Forest, Ohio
Posts: 379
15 yr Member
Default

Finz, I am really surprised that your WC claim is not covering your meds. Maybe this is something that you should check into. Lisa
Lisa in Ohio is offline   Reply With QuoteReply With Quote
Old 10-17-2010, 08:12 AM #6
wswells wswells is offline
Junior Member
 
Join Date: Mar 2010
Posts: 94
15 yr Member
wswells wswells is offline
Junior Member
 
Join Date: Mar 2010
Posts: 94
15 yr Member
Default

Finz, I totally agree with Lisa, I was a wc case and they payed for everything, and I mean everything, They even heated my pool,solar with gas back up. When ever I had a problem with them I would call my lawyer and he would file for an emergency medical hearing. I definitely think this is an emergency if you have been withou meds for so long.
If you have a lawyer, Please contact him and let him/her know what is going on, they will get it taken care of. Hope you feel better.
Your friend Wendy
wswells is offline   Reply With QuoteReply With Quote
Old 10-17-2010, 01:42 PM #7
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
finz finz is offline
Senior Member
 
Join Date: Feb 2007
Posts: 1,804
15 yr Member
Default

Quote:
Originally Posted by Lisa in Ohio View Post
Finz, I am really surprised that your WC claim is not covering your meds. Maybe this is something that you should check into. Lisa
Ugh ! I DO NOT want to open that can of worms. Yes, they should be......and should have been all along. When I started this game, no lawyers were involved and a different primary was writing for my meds, so I just had scripts through my regular insurance and never thought about it. I don't want them to know figure it out and slam me with 6 years of med costs !

Plus, WC would probably do the WC thing and deny coverage or make me wait forever for things.....and my WC lawyer acts annoyed whenever I call him........

So.....yes, you are right but I will do almost anything to not have to deal with WC
__________________

.


Gee, this looks like a great place to sit and have a picnic with my yummy bone !
finz is offline   Reply With QuoteReply With Quote
Old 10-17-2010, 08:01 AM #8
bobinjeffmo bobinjeffmo is offline
Member
 
Join Date: Mar 2009
Location: Lohman, MO
Posts: 120
15 yr Member
bobinjeffmo bobinjeffmo is offline
Member
 
Join Date: Mar 2009
Location: Lohman, MO
Posts: 120
15 yr Member
Default Just calling this the way I see it

You're not the first person to have a pain management doctor who gets locked into one or two major types of treatment that just happen to make him a truckload of money, meanwhile writing out monthly scripts for narcotics is not near as profitable, hence I'm sorry to admit that I think this doctor has his values driven more by his profit margin instead of your care and needs.

Real pain doctors look at the damage and then decide what's right for "you." With the type of injuries you're battling and the pain that goes with them, you do need a multiple discipline approach which will probably include medications. As much as I believe in the power with staying with one doctor, I think that if you were to look for another doctor and explain yourself out the way you've told us here, other pain doctors would understand why you're unhappy, therefore not holding your need to change to a new doctor against you. Your well grounded attitude will show the doctor how and why this problem is occurring. This will lead to better pain management. The problem isn't you, it's just your doctor if you ask me. By the way my heart really goes out for you. Bob.

Quote:
Originally Posted by vannafeelbettr View Post
Hi all! I suffer from Thoracic Outlet Syndrome, Lumbar RSD, Left Lower Extremity Radiculopathy, and both cervical and lumbar stenosis (several herniated discs). Had this problem 3 years now from a car accident. I have both a cervical and lumbar Spinal Cord Neurostimulators that work wonders for me and I'm very pleased with them. My problem lies in when my RSD flares up and the stimulators do not work with the burning sensation on the skin's surface. I need pain meds to take care of that.

So, the bigger problem.... getting the pain meds. My Pain Management Doc (who performed the stim procedures) told me to get them prescribed by my Primary Doctor (as he does not want to be bothered with appointments for minor stuff). I'd been getting them prescribed by my Primary Doc, who then told me she does not want to prescribe them for me anymore because it is a Pain Management Doctor who should do so (I agree with her). Then I go back to my Pain Management Doctor, who wants to perform more blocks and ketamine treatments instead of giving me meds -- don't get me wrong, I love the blocks and ketamine...just don't last and I cannot afford them. PM Doc tells me the pain meds are not good in the long run and refusues to prescribe, continues to push procedures (more $ in his pocket, I know). I'd hate to leave my PM doctor, he does wonders for me when I need my stimulator programs adjusted, and is a genius when it comes to RSD. I know if I switched to another PM, records would have to be sent and if my current PM doctor knew he'd be MAD (he's got quite a temper). Been 4 months now with no pain meds and am going through a torturous flare with RSD

Anyone else have similar experience? If so, how did you handle it??

Gentle hugs Vanna
bobinjeffmo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Rrae (10-17-2010)
Old 10-17-2010, 02:26 PM #9
Rrae's Avatar
Rrae Rrae is offline
Grand Magnate
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Rrae Rrae is offline
Grand Magnate
Rrae's Avatar
 
Join Date: Nov 2009
Location: i thought it was in my left pocket
Posts: 4,117
15 yr Member
Thumbs up Ditto!

Quote:
Originally Posted by bobinjeffmo View Post
You're not the first person to have a pain management doctor who gets locked into one or two major types of treatment that just happen to make him a truckload of money, meanwhile writing out monthly scripts for narcotics is not near as profitable, hence I'm sorry to admit that I think this doctor has his values driven more by his profit margin instead of your care and needs.

Real pain doctors look at the damage and then decide what's right for "you." With the type of injuries you're battling and the pain that goes with them, you do need a multiple discipline approach which will probably include medications. As much as I believe in the power with staying with one doctor, I think that if you were to look for another doctor and explain yourself out the way you've told us here, other pain doctors would understand why you're unhappy, therefore not holding your need to change to a new doctor against you. Your well grounded attitude will show the doctor how and why this problem is occurring. This will lead to better pain management. The problem isn't you, it's just your doctor if you ask me. By the way my heart really goes out for you. Bob.
I agree!
And regarding his office being 'bothered' with too many people requesting pain meds.....well, there's NO EXCUSE for neglect! If he's willing to do these high dollar procedures, he needs to be responsible for the ENTIRE package that goes with this. These doctors know dang good and well that the SCS usually still needs supplemental pain relief options.....
This is what DELEGATION is for!! He certainly can afford to staff a licensed individual to take care of these follow thru health needs. It wouldn't be that big of a deal to have someone taking calls and filtering the pain med requests to someone who can be on top of this.

There's only ONE other thing that peeves me more than what this thread is talking about and that is PHARMACY SKIMMERS!!!

I've seen up close and first hand the reality of what this type of corruption is doing to innocent people trying SO HARD to do whatever it takes to have their legitimate pain needs taken care of and yet for one reason or other, so many are not able to get the pain relief they need and deserve and end up hopelessly looking at ending their lives as the only way out.
I'm sorry to be so dramatic, but it's a reality that I can not comprehend.
There's NO excuse for pain patients to suffer, when there is PLENTY of REAL pain relief available.
Why not just let the street junkies be left to their own fate - the 'war on drugs' has gone wayyy over the top.
Can't we just shove them all in one of those multi-BILLION dollar space probes we are spending tax money on and send them out into space......
yeah.
Cuz obviously that money isn't going to go to the cause of trying to PROBE for cures of these conditions that plague us.
Ok, done with the Andy Rooney Rant
I'll shut up now.
Rrae is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
wswells (10-17-2010)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Do pain meds really make you pain free> Sydney Chronic Pain 24 02-08-2013 07:13 AM
problem with walking and foot pain Jim091866 Parkinson's Disease 1 06-15-2010 12:20 PM
new report on pain meds cost for pump vs meds lostmary Reflex Sympathetic Dystrophy (RSD and CRPS) 2 02-10-2010 08:18 AM
new report on pain meds cost for pump vs meds lostmary SCS & Pain Pumps 0 02-09-2010 07:33 PM
Need Evidence That Pain Meds WILL work for MS Pain Miranda Arden Multiple Sclerosis 10 11-14-2007 11:11 AM


All times are GMT -5. The time now is 04:19 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.