Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-10-2010, 02:15 PM #1
Jimking Jimking is offline
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You had coma treatment in the U.S.? If so that's a good thing because not long ago it was prohibited by the federal government for this procedure to be performed in the States. Two days under may be the reason its changed or it could be the State telling the fed to bug off, perhaps.
Congratulations on the 90% reduction in pain, you must feel like you've been born again, I'm sure!
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Kakimbo (08-13-2010), wswells (10-15-2010)
Old 08-10-2010, 03:00 PM #2
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Quote:
Originally Posted by Jimking View Post
You had coma treatment in the U.S.? If so that's a good thing because not long ago it was prohibited by the federal government for this procedure to be performed in the States. Two days under may be the reason its changed or it could be the State telling the fed to bug off, perhaps.
Congratulations on the 90% reduction in pain, you must feel like you've been born again, I'm sure!
If we talking Ketamine..I, too am very happy you had great success and some relief...

Only due to my recommended treatment as per Dr. S..I am being asked to have the 5-day sleep..which they made clear this is not considered the coma.. however, it is the moderate Ketamine dose.. the big dose 'coma' is done outside of the U.S.. and the 10 day out patient infusion is another option (which our very sweet Sandy RI did have recently).. that is a different, lower dose also.. Funny, althought they put us in a nappy state they are cautious with that word 'coma'... Either way..the insurance companies are so against approval of these treatments due to FDA approval in the States.....once again..take me behind the shed.. I am still fighting to get approval but not hopeful.. I pray for the day they can bottle the Ketamnie up and send it to our appropriate local RSD Dr.'s office and allow us to get it from there...Probably won't happen in my life time but it is a great thought..Heck, if we had cancer..we'd be in the infusion room the day after our diagnosis...

Hugz, Kathy
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Old 08-10-2010, 03:08 PM #3
Jimking Jimking is offline
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Originally Posted by keep smilin View Post
If we talking Ketamine..I, too am very happy you had great success and some relief...

Only due to my recommended treatment as per Dr. S..I am being asked to have the 5-day sleep..which they made clear this is not considered the coma.. however, it is the moderate Ketamine dose.. the big dose 'coma' is done outside of the U.S.. and the 10 day out patient infusion is another option (which our very sweet Sandy RI did have recently).. that is a different, lower dose also.. Funny, althought they put us in a nappy state they are cautious with that word 'coma'... Either way..the insurance companies are so against approval of these treatments due to FDA approval in the States.....once again..take me behind the shed.. I am still fighting to get approval but not hopeful.. I pray for the day they can bottle the Ketamnie up and send it to our appropriate local RSD Dr.'s office and allow us to get it from there...Probably won't happen in my life time but it is a great thought..Heck, if we had cancer..we'd be in the infusion room the day after our diagnosis...

Hugz, Kathy
That makes sense KS. I will say before my wife had ketamine infusions at the hospital her pain doctor was giving her a big shot in the arm of ketamine in her office. She was a mess for a couple of hours.
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Kakimbo (08-13-2010), wswells (10-15-2010)
Old 08-10-2010, 04:31 PM #4
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Quote:
Originally Posted by keep smilin View Post
If we talking Ketamine..I, too am very happy you had great success and some relief...

Only due to my recommended treatment as per Dr. S..I am being asked to have the 5-day sleep..which they made clear this is not considered the coma.. however, it is the moderate Ketamine dose.. the big dose 'coma' is done outside of the U.S.. and the 10 day out patient infusion is another option (which our very sweet Sandy RI did have recently).. that is a different, lower dose also.. Funny, althought they put us in a nappy state they are cautious with that word 'coma'... Either way..the insurance companies are so against approval of these treatments due to FDA approval in the States.....once again..take me behind the shed.. I am still fighting to get approval but not hopeful.. I pray for the day they can bottle the Ketamnie up and send it to our appropriate local RSD Dr.'s office and allow us to get it from there...Probably won't happen in my life time but it is a great thought..Heck, if we had cancer..we'd be in the infusion room the day after our diagnosis...

Hugz, Kathy
We were shocked at how sudden it all happened. We'd been begging for two years to get in on the Ketamine trials but it was definitely an uphill battle. I have no memory of the week prior to the procedure, but my wife, to whom I am ever grateful, was clear with the MD who suggested the treatment in the ER, that there'd been email traffic flying for two years with our names all over it. We looked in every corner of the States and were blessed when everything fell together in July. (of course it did take two ER visits in a row of which I remember nothing) He gave us no time to even call our insurance stating he had other patients to see and had to have an answer immediately.

He was very clear with us that this was indeed an induced coma not sedation and once a breathing tube was inserted and I was down for the count, he suggested to my wife that she may as well go home for the duration and they would call with any updates or emergencies. They did take me out four hours early as I was apparently having some issues, but nonetheless I ended up fine. As I stated before they performed a rapid detox as well and all went well.

My main purpose for joining this forum was to spread the word. THE INDUCED COMA IS AVAILABLE IN THE STATES. It is NOT a 10-14 day coma as purformed overseas. I was under for under two days and am currently enjoying an almost 90-95% remission. Dr. B stated I could expect as much as 9 months relief. It could be less but I am not stamping my foot with an expiration date. When the pain returns I will not need to go through the coma again. An infusion is conducted as a pseudo booster and hopefully will extend the relief. God willing all of us will have seen a cure soon.

God Bless

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