Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-16-2010, 01:41 PM #12
General General is offline
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Join Date: Aug 2010
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General General is offline
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Join Date: Aug 2010
Posts: 11
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Quote:
Originally Posted by Debby View Post
General,
Thanks for the info.

And I do think of them. We have a grandson that we raised who is in the Marine Corp. He just came home from Okinowa & will be going into infantry training again before being shipped to Afghanistan next year.

I have seen a doctor who wants to try a lower extremity lumbar sympathetic ganglion nerve block with Botox in it it. That will be after I have an EMG next Monday, which btw I am NOT looking forward to, to make sure I don't have entrapped nerves in my feet. I have to pay for the Box.....about $250 to $300 for a tiny vial.

DebbyV
The nerve block can actually be a pseudo cure if your RSD is diagnosed within the first 3-4 months. Here's the catch.... the good doctors are reluctant to diagnose RSD feeling that it is a dumping ground for anything an MD cannot figure out. After these months the likelihood of a block being effective drops exponetially. I have not had the box placed in my lower backand am reluctant to have any hardware instally with only a 50/50 chance of any success. They do however place the "spinal stimulator" outside your back for the first week or so and if it doesn't work they can remove it. My RSD is in my foot and I am scared stiff of them spreading it to my other leg in the process of conducting this treatment.

My best advice is stay as clear of pain meds for as long as possible and look into Ketamine trials in your area. Contrary to what you've seen on this board the 1-2 day coma IS being conducted. I know because I had it last month with great success. Now it's just how long will it last!

Good luck and God Bless.

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