Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-11-2010, 09:47 PM #4
Dubious Dubious is offline
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Dubious Dubious is offline
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Join Date: Jan 2009
Location: Paradise
Posts: 855
15 yr Member
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Quote:
Originally Posted by tatertim View Post
I'm having doubts about having a bone scan done in a few weeks, and wanted to get some other opinions about whether it's worthwhile or not. Outside of the obvious pros (getting it out of the way, gaining insight into what's going on inside me) and the cons (having radioactive matter injected into my body, the inconvenience of it taking six hours with two hour gaps in which I have nothing to do and no where to relax), I would really appreciate your input.

I've read several articles and posts questioning the true value of this test in diagnosing RSD, and honestly I don't want to do it.

You responses are appreciated.


Tim

Hi Tim,

I would get it. Especially if it is paid for by someone else. I forget the exact statistics, but they are about 60-70% sensitive which means that 30% of the time, or so, they are negative when the patient truly has RSD.

So, a positive finding is of value, a negative might be wrong. There ya go! Does life get any better than that? With regards to the ionizing radiation exposure, it is a short 1/2 life, low dose radioisotope so it it is of little consequence (although nothing in medicine seemingly is without occasional issues). Now, if they have been treating you for RSD and your findings are positive, it won't change treatment one bit. If they are holding back on RSD treatment and you have positive findings, then you potentially have much to gain. Otherwise, you're screwed! They'll use negative results to cut you off.

End result.....as Charlton Heston once said, "no one gets off this earth alive."
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