Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 09-27-2010, 12:02 AM #1
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Quote:
Originally Posted by fmichael View Post
Dear Rosie -

Should have picked up on something you said in another thread about your doctor's reaction to smoking, to the effect that you would be better off with cannabis. It's true. I personally am prescribed a drug called Marinol, which contains an exact copy of one of 9 naturally occurring THC molecules, and it's the best thing I know if for spasms, by far. The only problems with it are (1) it takes a while to come on but then your're stoned for hours - too long really - and (2) it's not a nice sharp crisp high, but something definitely more stolid. Sort of like cheap Mexican pot from 40 years ago, before everyone got into the cultivation of bigger and stickier buds. So forget about being productive on it in any sense. And, oh yeah, it leaves you (Not sure why they had to choose that particular THC to replicate, could have been the easiest, my docs don't know.)

But speaking of docs, I roll a die every time I go in to see my pain specialist and last week I was called on to produce a sample of my renal output. Not sure what would happen if they found a few unauthorized THC molecules in the stew - legal medical marijuana is after all the rage in California and I'm not under any formal "pain contract" - but where I have a great pain doc. who is comfortable prescribing Marinol in 5 mg. capsules (up to 4 /day) but NOT medical marijuana, I wouldn't want to test the professional relationship by adding something unauthorized to the mix. So I don't.

That said, I understand the same stuff is available in Canada in an aerosol spray that's shot in the mouth/under the tongue. No idea what's available in the UK, but it's certainly worth checking out if you haven't done so already. MS patients swear by the real thing.

Mike
Arizona will be voting November 2 on a Proposition (203) to pass the Arizona Medical Maijuana Act. Dispensaries will be limited to 124 in the state and you must have cancer, glaucoma, HIV, AIDS, Hep C, amyotrophic lateral sclerosis, chron's disease, agitation of Alzheimer's Disease or a chronic or debilitating disease of medical condition that produces one or more of the,following: cachexia or wasting syndrome; severe and chronic pain, severe nausea, seizures, including those characteristic of epilepsy or severe and persistent muscle spasms, including those of MS.

From what I've seen in other state's dispensaries, it looks as if each strain is designed with a particular goal in mind, with some being different strengths. The dispensary person keeps the customer's purchase on file and can respond better if Joe comes in and says the last strain didn't have long lasting pain relief.

I personally would like alternatives to Percocet and Gabapentin so I can get rid of these awful side effects, just wouldn't like to smoke it nor get the muchnies. I'm a baker so could try incorporating into something. I'm asking my pain manager this week what the ramifications would be if the bill passes.

I'm going to try to compose a note to some people in my community urging them to vote for this Proposition. Hope I don't get any blunts burned in my front yard, ha. If it passes in this state I'll faint.

Good luck Rosie.

Last edited by Mycah; 09-27-2010 at 12:28 AM.
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Old 09-27-2010, 11:21 AM #2
tmullen tmullen is offline
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I have found medical marijuana to be the only thing to reduce my spasms. And really the pain. I also had the baclofen trial which thankfully went better then planned I'll have the permeant one implanted oct 5. I use a vaporizer to medicate since it is 100x better then smoking it. I've found eating it does not work as well.
I hope you find relief in your spasms. They are the worst. You'll be in my prayers.
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Old 10-02-2010, 10:29 AM #3
Jenna Delaney Jenna Delaney is offline
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I to think it helps lower the pain of my rsd and the twitches i get in my foot..
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