Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 08-20-2010, 12:28 PM #4
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I am thoroughly confused.

When I saw my new pain management doctor, he said that even though it is called a bone scan (and looks at bones), he wanted me to have it done to check for RSD and pooling/clotting of the blood. That's why I was asking about the position you are in during the test, as I only have pooling when I am sitting or standing.

The doctor now says that it has nothing to do with blood, only bones and checking for RSD. I know I'm not crazy because my mom heard him say the same thing (about the bone scan checking the blood).

So I will be going ahead with the bone scan even though it is all done laying down. I am just a bit confused as to why he said two totally different things... but maybe he got confused... or maybe we got confused. Who knows. The nurse is trying to get it pre-approved by my insurance so that it can be scheduled. We'll see how soon I can get it done. I can't move forward with either the pain pump or the spinal cord stimulator until this is complete, so I am anxious.
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My name is Sarah and I am 25 years old. I have a lot of chronic health problems. Peripheral neuropathy and POTS (postural orthostatic tachycardia syndrome) keep me bedridden the majority of the time. I also struggle with degenerative disc disease, disc desiccation, spondylolisthesis, arthritis, polycystic ovarian syndrome (PCOS) with insulin resistance, allergies, sound sensitivities, and other health problems.
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