Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 02-17-2014, 08:40 PM #32
ginnie ginnie is offline
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Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
ginnie ginnie is offline
Elder
 
Join Date: Aug 2010
Location: Anna Maria Island Florida
Posts: 6,278
10 yr Member
Default Hi Mary

I don't have CRPS but I have friends that do. Have you been offered Ketamine infusions? This stands the test. It has been in the Medical Journals, as help for CPRS. I would go to the ends of the earth, to try this. I had the infusions for my cervical spine and it worked wonders. Our military were the first ones to use this drug as an infusion for severe wounds that produce CPRS. I don't know where you live, but if you post near to where you are, there are folks on NT who have also tried this. Don't opt for amputation until you try this. I know for sure that Tampa Bay Hospitals works with this medication. (Florida). Some pain specialist also have used this drug. ( Dr. Ramos Bradenton Fl.)
You do need better pain control. Don't end it, as there is still a lot of hope out there to try yet. Those thoughts often happen to people in severe pain. Don't loose hope, but research this drug, and where you might find availability. Ask your PCP if he knows anyone, or your pain specialist. Fight for your quality of life. NT will be here to listen anytime. You are not alone. I truly hope you can find better relief, and a better way to go forward with your life. ginnie
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