Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-25-2010, 08:06 PM #1
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Sorry to hear that you are pushed to this state with this disease. I can totally identify. I personally requested that my left leg be amputated above the knee as my RSD is from above the knee and down to the ankle. I requested this of both a neurosurgeon and a pain specialist. Both told me that an amputation will not work to relieve the pain as the diseased nerve areas are actually tracked far above the area that it innervates (thus the attempt at sympathetic blocks in your back used for your leg.) This is why they reserve a sympathectomy as a last resort option, which is essentially removing the entire nerve segment much further up. I am told that the likely outcome of an amputation in RSD would be "phantom pain" resembling the exact symptoms that you have with RSD even though the leg isn't physically present. Amputees frequently experience leg pain after amputation due to the fact that the nerves don't recognize that the leg is no longer physically present (and something that you may want to research to understand further.)
I was driven by the pain to attempt to "stage" an accident which would force an amputation (at a young age, even a severe trauma would cause surgeons to do everything they could to salvage a limb) due to severity. But when they said that it wouldn't even work if I could find someone willing to do it, I knew I just had to keep looking for other options.
This is what my docs explained to me-hope this helps.
Lori Lee
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