Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-20-2011, 01:32 PM #21
bobinjeffmo bobinjeffmo is offline
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Join Date: Mar 2009
Location: Lohman, MO
Posts: 120
15 yr Member
bobinjeffmo bobinjeffmo is offline
Member
 
Join Date: Mar 2009
Location: Lohman, MO
Posts: 120
15 yr Member
Default I've had the chop-chop

Amputation is never a solution to anything other than for the purpose of saving your life.

First, though there was a brief time around ten years ago when a few doctors felt this was a good idea, yet the fact remains that you never chop off any body part unless it's in the process of taking your life. No insurance will ever pay for this solution unless your life is at real threat due to blood clots, complete loss of circulation in the leg and/or severe and chronic infections.
Secondly, you cannot guaranty that just because you've chopped off the leg, you're cutting away the pain, in fact I think you'll find it exactly the opposite. Ever since I've had my high above the left knee amputation my pain levels have increased. My internal morphine pump dosage has been increased considerably due to there being more pain.

I understand why people are willing to do this, but sadly enough the reality is that amputation is never considered a viable option for pain management. Meanwhile don't give up because while I'll never assure you a pain free existence, there are things that can make a huge difference.

I'm on 160mg of OxyContin in addition to my now second internal morphine pump (first one lasted 5 1/2 years before the battery finally gave out) plus I take OxyIR throughout the day for breakthrough pain. While this is a considerable load of medication, I'm surprised at just how well this combo works together. It's expensive and it's hard on our body, but the fact remains that due to a very caring and brilliant specialist, we do manage to control my pain to average levels so I'm still able to enjoy more of the day then despise it. Sure there's electric jolts that can blow me out of my wheelchairs, spasms, and hot burning knives that can sort of ruin parts of the day and night, but life is a whole lot better with it than without it.

According to my doctors, the more we're in pain, the better we actually get at accepting and living with it. We learn how to live with more discomfort over time, and in time so will you. There are solutions for managing your pain levels better, but sadly enough cutting it away isn't the one that works in the end.

Best of luck and if I can be of help, write me. Bob.
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