Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-06-2010, 09:54 AM #16
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LordWood LordWood is offline
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LordWood LordWood is offline
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My response you quoted what not only to you and if your on a medication if dropped its for one of 3 reasons either its effectiveness wears off/ no need for it, your allergic, or your doctor feels your gaining to much of a dependence or adverse effects from it. Dilaudid is another potent drug from the opiate class. 4mg of Dilaudid is equal to that of 20-30mg of Oxycontin so one can quickly see with higher dosage you exceed Oxycontins strength. Dilaudid as well has a longer effect over the day then Oxycontin. A lot of RSD patients find relief with use of this drug. Methadone is another and is extremely potent it may take longer to effect but is worth it completely. Think of it as a chart at the top you have methadone and then under you have Dilaudid in higher doses as well as higher end Fentanyl (patches and pump) then Oxycontin 80mg. I have been in this field for over 7 years now and have been to quite a collection of specialists as well as through the med line. In regard to the point of whose fault it is while its reckless and childish of the abusers its the FDA that needs to be responsible, just because people abuse items does not mean they(the addicts) should be the ones we base our choices on. As the FDAs responsibility is to take care of us not the addicts. The problem is while physical therapy and no medications does work well in some cases and those others that can get away with blocks, they are a world of difference from those of us with internal and internal full body. Once your RSD reaches the point of control over your body even to the point of causing respiratory failure there is no question that meds are a must its just the hard job of trying to find a level that works enough. Ketamine is a complete joke as most of us know. If you can work with nothing I'm extremely happy for you gabbycakes seems your a fortunate remission, but unfortunately not all of us have that ability.




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Originally Posted by gabbycakes View Post
Wanted to clarify my comments in regards to the Oxycontin dispute. First Oxycontin is/was one of best pain control medications and I have taken it and honestly miss it and I never had any problem taking it, it was my Pain Doctor who would not continue to give it to me so if I wanted to stay with him I had to switch. I felt his reputation and what he was saying he could do was better for me then the oxy and it was the correct discision for me. I also don't get how Didaudid is compared to oxycontin, one is a morphine based and not time release and oxycontin is time released, that is where the danger and abuse comes in, and oxy truly is just a time released percocet without all the acedaminaphen(tylenol). And methadon is a man made product again not time released and works in a completely different way. I was told its not a breakthrought type of drug and needs to build in your system before it truly begins to work. I'm not a doctor or pharmacy spec. but I have been at this for 6-7 years with 7 surgeries many added parts to my arm and 3 - 5 day ketamine inpatient infusions so I think I have some experience in the area of pain medication. I also go to a very good doctor many of you know him and have asked me about him.

It's truly ashame that because we or most of us are on medication managment we really don't have any control of our destiny. We are controlled by the FDA and have to deal with the consequences of irresponsilbe people when it comes to pain drugs. That is truly why the oxycontin takers who really need it are having a problem it's really not because of the FDA or Purdue, honestly. I hope at the end of the day everyones pain is under control and feels secure once again.

Good Luck,

Gabbycakes
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