I have been doing well for quite a while, but over the last 3 days, I have had a flare of my RSD and my leg is humming. I have my SCS turned up so high that my leg is actually twitching, but how can you stand that for any period of time? I broke down and had my pain MD paged last night and he was out of town and recommended for a one time increase in my Lyrica, extra Percocet, and I took extra Baclofen, but was still up all night. He said that I can get oral Dilaudid on Monday. Both of us agreed that it would be stupid to go to the ER as it was a Saturday night and that fact that they have no idea what to do with me (no clue about CRPS). They would just knock me out and send me home (at least he is realistic, which I love about him.)
I'm just done. I know that we all get to this point, but I'm done with this crap. I'm exhausted and can only sleep for small stretches at a time. My eyes feel like fire, yet, I can't sleep. He can't get me in for a block until Tuesday, so this is my life until then.
Sorry, just needed a pity party. I know that many of you are so much worse off than I am, but you know how it gets when you're exhausted and hurting.