Hi GramE, How kind of you to respond and share your experience with all of us. Neurotin and Lyrica put a LOT of WEIGHT on me. It's insane. I went of gradually and didn't get my seizures back. Most foods don't taste good to me-am vegetarian now except fish. I've had RSD 15 years -full body and internal organs. Have anxiety and it sounds interesting -the adiphex I'm going to ask my Dr. about it for me. I take 2 high blood pressure meds, vicodin, lorazepam, seroquel for sleep, cymbalta -he is a neurologist, psychiatrist and pharmacologist. We are suspecting RA, so am going to see a Reumie Doc. The weight gain is hard on me emotionally and physically, I was very invoved with sports prior to RSD. I, too, have memory issues, trigeminal nerve disorder, herniated disc in neck, diverticulitis, and I think now RA. Am 61, married, wonderful married daughter who lives 5 minutes away. We live in Arizona.
Hope you find the support here that I and many of us have. Take care, loretta

Dear Loretta,
I'm not taking any of those yet, my neurologist is still optomistic about getting me 'back to normal' within the next year, but I think even he has adjusted his thinking in the last 3 weeks. I had a nerve block 9/27, which wore off 10/28 and surprised me by introducing my right foot and ankle to RSD. I haven't worked since and many days I have kindly but forcefully asked my husband to go down on the corner and see if anyone is selling morphine. Otherwise get a chainsaw and just get these things off of me.. Well last week doc gave me 2 inj in my sacroiliac and someone has turned the burner down to low and I actually have ankles. Now they are still pretty blue/red/purple, but the fire has gone out if I behave and not take too many steps. I wonder has anyone on here ever figured out what is too many?
My doc is an older orthodox Jew with a heart for people in pain. What a blessing he is. He is what I am most thankful for this thanksgiving. I have had my C4/C5 with bone spurs and pinched nerve repaired and I take 3 blood pressure pills, thyroid, Mobic for inflammation, Daracet & Vicodin and Xanax. and the Lidoderm which I unknowingly almost od'd on. Beyond dealing with the pain, the slowness of how I process everything is most difficult to deal with as I feel like I'm moving at the same speed(except walking) but everything takes twice as long on good days. I'm just beginning my 60's, have a wonderful husband who has his own health issues, 4 children w/ spouses, 10 magnificent grandchildren. My activities are limited to going to church when I can and two bible studies. That is all I've been able to manage before the shot last week. I'm in Indiana and not looking fwd to winter, but being at home is good. I am a mailman and work outside.
I have learned a lot just in the short time I've been here, and I know I am blessed by only being affected in my feet and ankles and my head(but some would say that has always been there). Thanks for your kind response, have a quiet day. pat

Hi Pat, I just saw my Dr. Monday and he told me Darvocet was taken off the market Friday due to complications of it with the heart for some people. He is a neurologist and pharmacologist and does trial studies so keeps up with the drugs. It came up, because I used to take Darvocet.
We are having a cold spell-35 at night, which causes intense pain for me. That is unusual for us in Arizona. Take care, loretta

I too suffer from crohns disease from the RSD. I throw up constantly and barely eat, my nerves also affect my heart so need BP meds to control. my bladder is also affected and shuts down if I dont get my flares undercontrol as soon as possible.

Sam