Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

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Old 08-31-2010, 11:23 AM #1
SandyRI SandyRI is offline
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Hi Lisa,

How is your walking? Are you able to get around without too much pain and difficulty? If possible, I would suggest moving around as often as you can, to get your circulation going. I suffered spread to my right leg last summer. I think Lidocaine infusions last summer helped the burn and swelling quite a bit. But I also think that my leg has been somewhat OK because I continue to move as much as I can - I walk several miles a day most days. There were some days that the walking was pretty awful, and I didn't get very far. But I still did it. My original injury was to my right shoulder.

I also had 2 doppler ultrasounds last summer when my leg was really swollen and discolored to make sure there was no DVT. Just to be on the safe side. I have gross varicosities in my right leg from the RSD. It also gets freezing cold, especially in the winter, and I used to wrap it in a heating pad all the time.

The best of luck to you. Sandy


\
Quote:
Originally Posted by Lisa in Ohio View Post
Hi Friends, I really need some help here. Since I have been on my heart med that has been new to me this summer, I am having a problem with my right leg feeling ice cold and ever so painful. Last night I was up until after 4AM (I know lots of us are) but it is kind of unusual for me. My RSD is allowed for my left arm only despite having to have bone grafts taken from both hips to put the arm back together and later fuse it. Today it has been over 90 degrees here and I am wrapped in an quilt with the heating pad on high to try to get it to feel warm. My leg is not swollen any more than usual and sweats like it feels they 90 degrees, but remains cold to the touch. I am about at my wits end here. I told the heart doc about this and he said to continue to take the med and that sometimes that this is just a side effect. After a month, I would hope to be over the side effects.

I really need to pull back on the pain meds as my college starts in a week. I did go off of the Avinza, and discovered that it was not helping much at all.

Please, please send some help my way. My stress level is way high right now with another WC hearing scheduled on the 15th and with school starting ( major memory issues) along with family issues.
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keep smilin (08-31-2010), Lisa in Ohio (08-31-2010)
Old 08-31-2010, 01:07 PM #2
keep smilin keep smilin is offline
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Heart I understand, Lisa..

Quote:
Originally Posted by SandyRI View Post
Hi Lisa,

How is your walking? Are you able to get around without too much pain and difficulty? If possible, I would suggest moving around as often as you can, to get your circulation going. I suffered spread to my right leg last summer. I think Lidocaine infusions last summer helped the burn and swelling quite a bit. But I also think that my leg has been somewhat OK because I continue to move as much as I can - I walk several miles a day most days. There were some days that the walking was pretty awful, and I didn't get very far. But I still did it. My original injury was to my right shoulder.

I also had 2 doppler ultrasounds last summer when my leg was really swollen and discolored to make sure there was no DVT. Just to be on the safe side. I have gross varicosities in my right leg from the RSD. It also gets freezing cold, especially in the winter, and I used to wrap it in a heating pad all the time.

The best of luck to you. Sandy






\
I totally understand the temperature difference with you legs.. My right leg is always much colder to the touch than my left, right being my worst RSD leg and side.. and my pain level remains the same.. No break for this chick.. I cover my leg up best I can without causing pain from my snuggly blanket.. it is an RSD flukey thing.. I try to keep walking (Iam an ugly walker).. best I can but I have a very painful gait..but it is important to push thru the pain to achieve optimum results..and use...

I also have a heart issue which for that I can take medicine but this I feel is totally our RSD friend..

My heart goes out to you, Lisa..I am sorry for your troubles... hang right in there cuz weeze we got yur back here...

Hugz to you, my friend.

Kathy
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Old 08-31-2010, 08:56 PM #3
Lisa in Ohio Lisa in Ohio is offline
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Lisa in Ohio Lisa in Ohio is offline
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Thanks to all. Sandy, I do try to walk and am still able to take care of my house to a certain degree. I can't walk very far unless I take the heart meds due to the tachycardia and irregular heartbeat. Last summer I would try to walk about three miles a day 4-5 days a week, so I understand what you mean.

Loretta, I do not take any anti-anxiety meds as WC will not cover these drugs, nor will my regular insurance because the problem is related to the RSD (vicious circle). I have visited the site you suggested and it is very helpful. I am studying business management with emphasis in human resources and only have two quarters left. I can appreciate about your daughter studying during your appointments as I always have my college bag with me where ever I go.

Aint, I am so glad you had a good weekend. You deserved it. I too, have been on the divorce route. I left my husband after many years of abuse after I fond out that he had be sexually abusing my daughter. I walked out of the house with our clothes, the kids toys, and a few special items that I had left that he hadn't destroyed. We started over with what mattered most, each other. It was really hard but now I almost have my house paid for and have put both kids through college and grad school. ( now mamma has to get smart). I really hope that you can still play guitar and sing. I have always said that my music is my cheap therapy. I used to be a really good pianist. I think that that is what helped me keep mobility in my hand and fingers when the accident happened and RSD set in. I am still able to play some but not at the level that I was able to play before. It is really a loss. Pete, I hope your good feelings from this weekend continue through this week.

Bob, thanks on the heads up and letting me know what look out for, I wouldn't have thought about some of those things.

Kathy, keep that leg cozy. I really think that this is related to the heart medicine. I quit taking it as of Monday, and while the leg is still cooler, I am not sitting here with the tears running down my face. I have twice told the cardiologist about this and he thinks that it couldn't be that bad. I figure is I have the Big One and check out, that would be better than dealing with all of this.

Again thanks to all, Love Lisa
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Old 08-31-2010, 09:33 PM #4
keep smilin keep smilin is offline
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Heart Oh no!!

Quote:
Originally Posted by Lisa in Ohio View Post
Thanks to all. Sandy, I do try to walk and am still able to take care of my house to a certain degree. I can't walk very far unless I take the heart meds due to the tachycardia and irregular heartbeat. Last summer I would try to walk about three miles a day 4-5 days a week, so I understand what you mean.

Loretta, I do not take any anti-anxiety meds as WC will not cover these drugs, nor will my regular insurance because the problem is related to the RSD (vicious circle). I have visited the site you suggested and it is very helpful. I am studying business management with emphasis in human resources and only have two quarters left. I can appreciate about your daughter studying during your appointments as I always have my college bag with me where ever I go.

Aint, I am so glad you had a good weekend. You deserved it. I too, have been on the divorce route. I left my husband after many years of abuse after I fond out that he had be sexually abusing my daughter. I walked out of the house with our clothes, the kids toys, and a few special items that I had left that he hadn't destroyed. We started over with what mattered most, each other. It was really hard but now I almost have my house paid for and have put both kids through college and grad school. ( now mamma has to get smart). I really hope that you can still play guitar and sing. I have always said that my music is my cheap therapy. I used to be a really good pianist. I think that that is what helped me keep mobility in my hand and fingers when the accident happened and RSD set in. I am still able to play some but not at the level that I was able to play before. It is really a loss. Pete, I hope your good feelings from this weekend continue through this week.

Bob, thanks on the heads up and letting me know what look out for, I wouldn't have thought about some of those things.

Kathy, keep that leg cozy. I really think that this is related to the heart medicine. I quit taking it as of Monday, and while the leg is still cooler, I am not sitting here with the tears running down my face. I have twice told the cardiologist about this and he thinks that it couldn't be that bad. I figure is I have the Big One and check out, that would be better than dealing with all of this.

Again thanks to all, Love Lisa
You, Lisa..ain't checkin out..We need you here with us!! Weeze family!!!

Love, Kathy
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Old 09-03-2010, 09:56 PM #5
Wilbyfree Wilbyfree is offline
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Quote:
Originally Posted by Lisa in Ohio View Post
Thanks to all. Sandy, I do try to walk and am still able to take care of my house to a certain degree. I can't walk very far unless I take the heart meds due to the tachycardia and irregular heartbeat. Last summer I would try to walk about three miles a day 4-5 days a week, so I understand what you mean.

Loretta, I do not take any anti-anxiety meds as WC will not cover these drugs, nor will my regular insurance because the problem is related to the RSD (vicious circle). I have visited the site you suggested and it is very helpful. I am studying business management with emphasis in human resources and only have two quarters left. I can appreciate about your daughter studying during your appointments as I always have my college bag with me where ever I go.

Aint, I am so glad you had a good weekend. You deserved it. I too, have been on the divorce route. I left my husband after many years of abuse after I fond out that he had be sexually abusing my daughter. I walked out of the house with our clothes, the kids toys, and a few special items that I had left that he hadn't destroyed. We started over with what mattered most, each other. It was really hard but now I almost have my house paid for and have put both kids through college and grad school. ( now mamma has to get smart). I really hope that you can still play guitar and sing. I have always said that my music is my cheap therapy. I used to be a really good pianist. I think that that is what helped me keep mobility in my hand and fingers when the accident happened and RSD set in. I am still able to play some but not at the level that I was able to play before. It is really a loss. Pete, I hope your good feelings from this weekend continue through this week.

Bob, thanks on the heads up and letting me know what look out for, I wouldn't have thought about some of those things.

Kathy, keep that leg cozy. I really think that this is related to the heart medicine. I quit taking it as of Monday, and while the leg is still cooler, I am not sitting here with the tears running down my face. I have twice told the cardiologist about this and he thinks that it couldn't be that bad. I figure is I have the Big One and check out, that would be better than dealing with all of this.

Again thanks to all, Love Lisa
Dear Lisa,

I read your post last night and left the forum astonished. First and foremost, after all you have been through with your husband, children, (I do hope your daughter has made peace with that, I am not a hater, but there is no room in my understanding for that type of behavior). You picked up and left with your children, you were also abused, and still managed to pick yourself up, manage a new life, put two children through school and paid off your house and dealt with your own physical ailments!! You are still attempting to improve your life and trust me being a mother of three that job is never done. Girl you need to pat yourself on the shoulder and be proud of what you have done and the accomplishments that you have made as a single parent! I am so impressed and you are a perfect example of not allowing any obstacles (including rsd) to get in the way of what you want. Dealing with this pain everyday is no cake walk, sometimes we just get tired and that is ok. You sound a bit overwhelmed right now and anxious, I agree with Loretta on the anxiety, and most of these medications are fairly cheap, I believe they qualify for the four dollar copay at Walmart. They truly have helped my pain tremendously. As far as the cold leg, yes that is very uncomfortable to say the least but is part of the disease. I, like KS, use my heating pad even in the summer, it too helps the pain and circulation. I wish you all of the best my friend, you are a very strong lady, your just a bit nervous about your upcoming committements, and we RSDers fear committements because our days are so unpredictable. Best of luck with your classes, you will do great!!! God Bless You and Your Family!!

Jeanie
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