Hi Lisa,

Welcome to NeuroTalk ! So sorry to hear that you have been diagnosed with RSD but glad you found us - you will find lots of help and support here !

I also have RSD. It affects my left leg and both arms. I got it when I was 12 years old after an ankle sprain and am now 15.

I agree with what the others have said, make sure you find a good Pain Management Doctor or Neurologist that knows about RSD. It took me ages to find a doctor that knew about it but was soo worth the search in the end!

PT is really important. It's important with this disease that you move as much as possible, though be sure not to overdo it also as that can cause more problems - you have to find the right balance. Again, find a PT that knows about RSD and chronic pain. I've been in PT since I was diagnosed. I spent 13 months in a wheelchair after losing coordination in my legs and 3 weeks of intense PT got me back walking short distances. I'm not going to lie and say it was easy - it weren't and was extremely painful but helped so much being able to walk and have a bit more independence ! I still have LOTS of pain (averages on a 7-8 out of 10 on a daily basis) and do home exercises at home as well as PT.

Have you looked into the Hyperbaric Oxygen Chambers seeing as you can't tolerate medications? I know some people with RSD that have had it and found it useful ... its even put some into remission ! Everyones diferent though.

I do hope you feel better soon. Know that you can come here and talk any time - were here for you!

Alison x