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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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09-17-2010, 12:44 AM | #1 | ||
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I have been having heart problems for a few years now. I have had 2 doctors tell me my problems are bc the RSD has spread to my heart. I saw a Cardiologist I used to work with today. She was really sweet & knowledgable about RSD!!! YAY!!! This was my first appt. with her today. She did an EKG & an ultrasound of my heart. I have to go tomorrow for a pulomanry function test. I also have to wear a holter monitor for 30 days. Holter monitors record your heartbeats so you know if it finds anything abnormal. It should come in the mail tomorrow of Saturday. I'm a little nervous, but just wanna know whats going on. My cardiologist said if all of this comes back normal, then it is the RSD. Even if it does show abnormalities, she still thinks RSD has spread to my heart. It is already on right side of my body & internal on my stomach. My cardiac symptoms are shortness of breath, racing heart, shallow breathing, hyperventilating, palpitations, fluttering in chest, & syncope (passing out) when these symptoms are present. I think that is it. Will let yall know how the polmonary function test goes tomorrow.
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09-17-2010, 01:55 AM | #2 | ||
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Damn FG, that stinks !
Good luck tomorrow !
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09-17-2010, 02:26 PM | #3 | ||
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Sounds like you and your Cardiac Drs. are on top of it. Please know we are thinking of you and hoping for the best. Your friend, loretta |
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"Thanks for this!" says: | SandyS (09-17-2010) |
09-17-2010, 06:36 PM | #4 | |||
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Dear firegirl -
Please check out the very good thread, started by Ali's mother last month, Vasovagal (Reflex) Syncope and RSD http://neurotalk.psychcentral.com/sh...d.php?t=129261 As blood pressure does not reflect RSC/CRPS of the blood vessel themselves, but rather the autonomic neural inputs into those nerves that "innervate" all blood vessels other than capillaries, some forms of cardiac dysrhythmia, specifically sinus tachycardia, while not being "RSD/CRPS of the heart" may reflect autonomic dysregulation secondary to RSD/CRPS, which in turn affects the heart. See, Cardiac dysrhythmia, Wikipedia: Tachycardiashttp://en.wikipedia.org/wiki/Cardiac_arrythmia See generally, Urological Symptomatology in Patients with Reflex Sympathetic Dystrophy, J Urol. 1996; 155:634-637 at 636, FULL TEXT @ http://www.rsds.org/2/library/articl...enot_Rivas.pdf: There is no proved explanation for reflex sympathetic urological dysfunction among our patients. However, our study suggests that sympathetic dysfunction can result in the development of neurogenic lower urinary tract dysfunction.Bottom line: there needn't need be CRPS anywhere near your heart for the disease to affect its neural inputs from the brain. On the other hand, check out Atypical Chest Pain: Evidence of Intercostobrachial Nerve Sensitization in Complex Regional Pain Syndrome, Jennifer W. Rasmussen, MD, John R. Grothusen, PhD, Andrea L. Rosso, MPH, and Robert J. Schwartzman, MD, Pain Physician September/October 2009, FULL TEXT @ http://www.rsds.org/2/library/articl...usen_Rosso.pdf which could be more indicative of CRPS actually approaching the heart. Hope this is useful. Mike Last edited by fmichael; 09-18-2010 at 01:06 AM. |
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09-17-2010, 09:16 PM | #5 | ||
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Hi Firegirl, It sounds like you are going through all of the same things I had going on this summer. I have done all the tests and monitering that you are doing. My symptoms are exactly like yours. My results did show damage from two slight heart attacks that I had. I just felt the symptoms, I did not have a catastrophic event, but the damage was already done. I would like to ask you if Elavil is one of your medications? By the way, you got very lucky with your cardiologist, mine had never heard of RSD, would not listen to me about it and has no apparent desire to learn about it. I am sure that my problems are RSD related, but since mine is the result of a work place injury I am not going to try to link the heart issue to it so that I can get timely medical care. Can you imagine!! It would take 6 months to get approval to have a heart attack, and another 6 to treat it. Anyhow, good luck and try not to be too nervous, Lisa
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09-18-2010, 04:53 PM | #6 | |||
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Here's another citation regarding the role of sympathetic nervous system in cardiac dysrhythmia, only this time dealing with atrial fibrillation:
Inducibility of atrial and ventricular arrhythmias along the ligament of marshall: role of autonomic factors, Lin J, Scherlag BJ, Lu Z, Zhang Y, Liu S, Patterson E, Jackman WM, Lazzara R, Po SS, J Cardiovasc Electrophysiol. 2008 Sep;19 (9):955-62. Epub 2008 Apr 9. Last edited by fmichael; 09-19-2010 at 03:33 PM. Reason: typo |
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09-19-2010, 09:40 PM | #7 | ||
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I failed my pulmonary function test horribly!!! I could not inhale or exhale at a high enough rate for the machine to even register that I was breathing. I also could not hold my breaths long enough to get a reading. 3 different techs tried & nothing!!!! I'm not quite sure what this means & if anything needs to be done about it. My 30 day heart monitor should come in the mail any day now. It was supposed to be here last Saturday.
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"Thanks for this!" says: | loretta (09-26-2010) |
09-20-2010, 04:50 PM | #8 | |||
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Hi Firegirl,
So sorry to hear about the problems you are currently having! I really hope your appointment went well and that you are feeling better now! I have Syncope also and was diagnosed with POTS (quite a long name but it's Postural orthostatic tachycardia syndrome). It's a condition where your heart beats a lot faster than normal and reduces your blood pressure at the same time. I collapse on adverage 20-25 times a day and it's really scary especially when out in public. I have had to pack in School and am now home tutored because of it. My Doctor told me POTS can be common in Chronic Pain patients so that might be something to look into for you. My mum and I are attending a Conference here in the UK a week on Sunday all about Syncope and POTS. All of the leading countries doctors in that area are there so it should be really informative so i'll let you know how it goes. Best wishes, Alison x
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09-21-2010, 07:01 AM | #9 | ||
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My cardiologist also believes that my heart problems (PVCs, tachycardia, and runs of SVT) are a direct result of RSD affecting my heart. He explained it all to me and I wish I could repeat it as eloquently as he does because it makes perfect sense when he says it. |
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"Thanks for this!" says: | loretta (09-26-2010) |
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