Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-14-2007, 02:12 AM #1
phyllis phyllis is offline
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Smile hello! I am a new member...........

hello to everyone, I have RSD and had a bad car accident a year ago, with brain damage, herniations in my neck and back. In the Er I can remember saying over and over how my legs were burning, they felt like they were on fire............and I kept saying How I felt very loopy! An uninsured limo bus driver hit me................I was stopped , waiting to turn into my neighborhood..........I was on my way home from work, I am a nurse, I worked the night shift. He was coming so fast behind me, I never saw him.............glad I didn't see it coming!

My family Doc has been great, I wanted to see Dr.Swartzman, but he does not get involved in Litagations................so I have been looking for another Doctor...........I may have an appt. soon with Dr.Getson, I have heard he is wonderful. I have been getting worse, use a cane now, and have "cold RSD"..........this winter weather does not help..........I have had alot more pain and trouble moving. I am also waiting to get warm water therapy.

I have a great Chiropractor, Dr.Rosemary Calio, she is in Marlton, she has been a big help for me through all of this.............she is terrific, in case anyone is looking for a Chiropractor.
My deep faith has gotten me through this, I pray alot. And I have a wonderful family..............they are my inspiration. Six kids, 3 boys and 3 girls. I still have four at home. And two loyal poodles that are at my side all day long...........I rescued both of them, they fit right into our family.

I hope to talk to some of you and share in your support forum........God Bless, phyllis Smith
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Old 02-14-2007, 09:24 AM #2
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I have copied this over from Social Chat forum so that Phyllis can meet the good folks here on RSD
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Old 02-14-2007, 01:30 PM #3
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Hi phyllis,
I'm glad your family doc and chiro are good - that is a big plus to have at least a couple of good docs on your side to help.
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Old 02-14-2007, 01:51 PM #4
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Default Hi Phyllis,

Welcome to the group.

I wanted to ask you what "cold RSD" is. I don't believe I have heard that term before on here. Of course with my memory there's not much I remember anyway. LOL

It's great that you have such good family support. That is always a plus with what we go through with RSD.

i got rearended years ago by a winnabego. I saw him coming and couldn't do anything but just let him hit me. I was froze. I know how that is. I was in a Dodge Dart. Now I am always watching behind me. I'm paranoid about it.

I hope you hang around you will find some great help here.

Ada
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Old 02-14-2007, 04:24 PM #5
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Hey Phyllis

Welcome! Sorry you have had to be here!!! Your drs sound great...

Ada - cold RSD is when the first temperature/ colour changes are hot and red or cold and blue..... mine was cold - so for the first year I had freezing cold limbs etc etc. Apparently, hot RSD is the preference of the two??

Take Care

Rosie xxxxxxxxxxx
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Old 02-18-2007, 12:25 PM #6
InHisHands InHisHands is offline
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Quote:
Originally Posted by phyllis View Post
I may have an appt. soon with Dr.Getson, I have heard he is wonderful.
Phyllis, welcome!

I wanted to tell you that I posted some info about Dr Getson in this thread:
http://neurotalk.psychcentral.com/showthread.php?t=9830 (on page 2)
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Old 02-18-2007, 12:42 PM #7
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Default Hi Phyllis,

Thanks for clearing that up for me. Maybe that is what is going on in my legs. They are cold all of the time now, just started about a month ago.

You have 4 kids at home. I bet you have a time taking care of them in the shape you are in. I have 2 grandson's and Bill always helped me with them and now that he's gone I have to cook and do more with them. My oldest is great though, he helps me a lot. My 12 year old is my lazy one. He's really not lazy though, he shows signs of Fibro.

I hope you are seeing some better days and enjoying being here with us.

Ada
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Old 02-19-2007, 02:04 PM #8
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hello Phyllis I am a new member also I just read about evryone and all the help people give to each other. It is so nice to see you here I hope you well and prayers to you. lilly
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Old 02-21-2007, 08:15 PM #9
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Smile Welcome

Hi Phyllis,
Welcome to the group. I just joined the group about a month ago and its been a great group. There are so many helpful links here and so informative.
I feel its so important to like your doctor so that is good that you like your doctor nothing worse when you can't talk to your doctor. My Doctor died two years ago that treated me for my RSD for 22 years he was a wonderful doctor and person. I hope you find relief for your RSD soon Take Care

Laraine
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Old 02-27-2007, 04:17 PM #10
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Smile Welcome...but sorry you need to be here

Hello Phyllis,

Welcome to the best support system available to people with CRPS/RSD pain. There are many well informed and caring people here...Best of luck to you!
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