PS.
Randy -the guy who did the Long Beach Run this year in December is planning a bigger event for next year.( I think Sandel posted about it )Richard Dean Anderson was there along with the" Laker girls".They had great raffle prizes donated .
I just received an email from him and he told me not to be surprised if events like his popped up all over the country !!!!
He is not even afflicted.He is doing all this for his mom - what a guy
RSD awareness LIVES and it is spreading
It is OUR TIME!!!!!!!!!
To quote Randy "THINK BIG "

Much peace
GnP

Hi,
I live in Los Angeles and wanted to know how I could get involved in RSD awareness.
Thanks,
Moselle

PM me Mo

Peace
GnP

It sounds like things are happening for RSD in your area that is good. As you said, maybe we will see other states mimicing what is being done there by Richard Dean Andersen and the other stars that jump on the wagon for RSD, whether they have it or not.

Thanks for the info on what is happening in Ca. I think that's a good beginning.

Ada

Hello, GP,

I think you missed my point in my last post, which was (admittedly), understated: It is possible that Paula Abdul is taking an amount of ketamine necessary in order to control her symptoms, and the side-effects of that dosage are responsible for some of the incidents so widely discussed.

Specifically, I wrote: I don’t think it would be difficult for someone in her position to find a doc willing to give her enough ketamine to keep her symptoms under control (and hopefully not as much as some might prefer).

As a former social worker with drug counseling privileges at a state psychiatric hospital, I disagree with your opinion that ...she has the twitches and head turns of a long term(opiate) abuser… first because these are not acknowledged signs of opiate abuse, and also because they are typical of many types of drug and alcohol intoxication, and thus cannot be excluded as indicators of ketamine use.

In previous posts I have talked about my misgivings after reading articles describing incredible improvement in CRPS patients following 5 day ketamine infusions, and noted that forum members who have undergone this therapy did not report achieving these remarkable results; both of which led me to conclude that if my RSD was severe, and if I had the money…I would prefer euphoria and activity over pain and disability any time.

Also,her RSD is limited to a rather small part of her body.Her other pain issues are from disc and other back, neck and other injuries. Although you claim to know her, and to have friends, therapists, and physicians in common, I have to question whether you know enough about her RSD to dismiss her symptoms as not sufficient to justify a drug that (I hope) would be prescribed by a physician. I also wonder how one can discuss whether she abuses opiates when she has (according to you), multiple other pain issues.

She may not be functioning at a level that most members would like in an RSD spokesperson, but since she appears to continue to make money and enjoy life, and especially since we agree she is probably not interested in becoming anybody’s RSD spokesperson, I hope we (the forum) might want to talk about what ketamine dosage might be most appropriate to control symptoms, and what sort of side-effects we would be willing to tolerate…Vic

Hi,

As a regular recipient of Ketamine for over a decade now I can assure you that any does of Ketamine sufficient to cause hallucinations and euphoria would not enable anyone to dress to the hilt, put on make-up and work in front of a camera.
Ketamine when used properly in a well supervised manner rarely causes hallucinations to any degree and certainly not euphoria.

In my Ketamine experience I have only ONCE ever experienced hallucinations and that was my very first when it was still some what experimental.

The aim of Ketamine therapy is to relieve pain with a dose that enables lucid thought and quite normal activity.
*This of course does not apply to the coma therapy which is an all together different process.

cheers
Tayla

I don't know much about the Ketamine but I did read that if they keep the dosage low then the hallucinations don't happen. I think Sandel pulled up an article on that just last week.

My feelings is as Tayla said about her Dr. If I went to my Dr. and he saw I was a mess, he'd reem me a new ***** and have the girls take me home and then ween me down off of my Methadone. Then if he couldn't get me straightened up, I would be gone. I saw that happen to a lady that he had been seeing for 15 years.

I don't know why she hasn't been investigated for the way she acts. They sure seem to be going after everyone else that's doing drugs on TV. Here she is on a show for teens and this is what they see and think it's ok that she acts this way. I don't even think she's ever contributed enough to the acting and singing world to be deemed a star.

She must have a Dr. that will give her anything she wants whether she shows up to see him or not. If they took what happened to Anna Nicole then they would start checking people like her out.

If I was so high on drugs that I went into my Drs. office or made a fool out of myself in public, I would be so embarrassed after I got straightened up from the drugs that I would crawl under the floor. The table wouldn't be low enough.

I don't want to set that kind of example for my kids and grandkids either. They know I am on heavy duty meds but they can stand me by the two friends that grew up with my daughter and see that I act normal next to them. They drive this way too. One of those girls called me one evening, she had taken her son to the Library. She sounded so drugged out that I actually told her that she didn't need to be driving in that shape.

As far as Paula, I sure don't hate her. It's just that she needs help the same as Britney Spears and because they are movie stars they can be the way they are and the world seems to get enjoyment out of it. I believe that they are being made martres when they die like Anna Nicole, instead of being cared for before they die.

I do see the problem with some Drs. handing people any meds they want and at any dosage.

Ada

I don't know if anyone realizes this or not but Paula has had several fusions in her cervical spine. I was watching a documentary about her life and her doctor was on speaking of it. She even stated or admitted to acting loopy but said she couldn't help it (when American Idol first began). She said she was sitting on her hands to keep from squirming from the pain. Since then I have read that she receives Enbrel injections. Now...how true all of this is...I don't know...I am not her doc and wasn't there. And MAYBE they have told her it is RSD but it could also be Central Pain and on and on it goes. But it DOES appear, at least as of late, that she is NOT acting as loopy or fidegty. So, perhaps the injections are working or whatever it is she is doing. But Vicc is right...she does appear to be moving on and enjoying her life. So, what she is doing or taking seems to be working for her. In my own opinion, I can see a difference for the better...at least so far.