Originally Posted by PopPop (Post 706840)

I avoided opiods for three years because I'm a recovering alcoholic with 11 years sober. When I was finally diagnosed correctly with RSD and met a competent and compassionate pain mgt doctor he assured me the clinic would monitor me closely. I was at the end of my rope with the pain and it affected every part of my life for the worse. After seven years the RSD has not improved. Every couple years I have had to increase the opiods. At one point I was on a daily dose of 90 mg of Avinza (time released morphine) and four 5/325 norco. I wanted to try and reduce the Avinza in favor or more norco for break through pain. Two years ago I cut down to 60 mg. and increased the norco to five a day. Now the pain is worse with the cooler weather here in the midwest and I'm going to ask my doctor to consider putting me on 7.5/325 norco and stay with five a day. I know better than to tell my doctor this but I currently run out of the norco in about three weeks and get refills every four. I have to hold back a few days supply to take before my appointment because everyone at the clinic is urine tested for what they are supposed to be taking and not taking. I've been keeping a pain diary for the past two months which I find helpful in sharing with my doctor when trying to change my meds. I also recently posted asking for advice from anyone who has experience with Soma. We have to be our own best advocate and a forum like this is helpful. The difference between addiction and physical dependence in the relief of severe chronic pain is well understood by people in our postition. Keep up the good fight.

Originally Posted by bobinjeffmo (Post 701979)

I got my first morphine pump 7 1/2 years ago. It lasted 5 1/2 years before the battery finally knocked out. I then had to go a bit over three months without one because of more surgeries I had to take care of first so I was reminded what life was like without this fantastic little machine - and I'll tell you I was in pure hell. After we installed my second morphine pump 1 1/2 years ago, I once again was reminded just how unbelievable of device these things really are, but there are problems that go with them - so you've got to accept the bad with the good.

First the test is an overnight stay in the hospital where they'll inject morphine directly in your spinal fluid. The pain went away and I bawled in tears it felt so good. 4 hours later it burned off. You'll know on the spot of this will work. If the pain either considerably eases up or goes away, it should work. If the pain is still there, then it wont. The worse story I read on this very site was about a person who was complaining about their pump not working even though they'd lied to the doctor during the test about the pain going away even though it hadn't during the test. For this person, their lie is going to make a heap of future problems and I'm glad I'm not in their shoes. Meanwhile, I just can't fully describe how much of a difference it's made in my life.

After doing my morphine pump test we installed my 20 grand pump the following week that ran around $1,500 per refill every 8 to 9 weeks during the early years (I haven't kept up so I know it's more expensive now). When we installed my 2nd pump last year the cost was 30 grand so this is no cheap up front investment. In addition there was a huge lump on my spine where the catheter (a tube is placed from the pump that sits in a pocket in front of your tummy through the middle of your body) is sewn into place that took over 6 months before the swelling was small enough to not really bug the heck out of me all the time though it still does and can get very sore to this day. Then there's the hockey puck sized device you have to carry around inside your tummy that's another tad annoying byproduct. This thing isn't small no matter what Medtronics web site says, and so bending over is a much greater challenge not to mention the fact that my waist size went up over 4 inches thus all my clothes were either worthless or didn't fit right. There is no silver bullet. On a positive note, my second pump has a much larger reservoir so I don't have to go in near as often to get it refilled.

Morphine pumps can help but I'd say their main purpose it to moderate out pain throughout the day. This type of expensive technology is handed out to only the worse cases and all of the physical damage and documentation must be perfect or it will never get through the insurance companies or Medicare. Just warning you up front since I've see others who have had problems though mine was approved in less than a week.

It is an option worth exploring, but it comes with other prices. Would I live without one, heck no! Am I terrified with all the changes in insurance that I won't be able to get one next time my battery dies, you're darn right. Am I thankful each and every day for this annoying gadget that's constantly in my way but that gives pain relief like none other, more than you'll ever know.

Talk it over with your doctor and see if this is a test worth taking and then go from there. Always be honest at each step along the way good or bad. It's my opinion that more people suffer from bad relationships with their pain management doctors because of not always being 100% up front than for any other reason. Your strength of character and reputation will go a long ways toward earning the right to have this option given I assure you.

Best of luck and if I can be of any more help let me know, Bob.

Originally Posted by Anthony77 (Post 737556)

Hi - I am trying to assist my father in the process of being set up with a pain pump. What is the best one to get. He mentioned the medtronic 40. Also, they are going to start him off with dilaudid and lidocaine. He said that the trial gave him some relief, but not complete. Should he ask to try different medications before just using what they have tested. And, I think they just did some injections for the test. Do you think they might be more accurate in determining the dosage if they do a continuous test with higher and higher dose until he is not in pain?

Originally Posted by lorigood243 (Post 711252)

Before i was diagnosed with RSD which was 4 months ago...I was taking 120mgrs of Oxycontin a day and 60mgrs of percocett. I still had the burning pain and it really didnt work well. Then i changed doctors and am on he Fentanyl patch and Methadone. Now i dont have the burning feeling and am not in pain when sitting still, but when i go to move then i feel different pains.
Im just happy to be out of pain sitting still which is something i never had with the opiates for the 5 years that i took them.
Lori

Originally Posted by Jimking (Post 745045)

Lori, isn't Fentanyl an opiate?

Originally Posted by Koala77 (Post 745254)

Fentanyl is a powerful synthetic opiate analgesic similar to but more potent than morphine.
http://www.nida.nih.gov/drugpages/fentanyl.html

Originally Posted by Jimking (Post 745355)

Does Fentanyl come in another form?...