Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 10-25-2010, 01:41 AM #31
yiisd yiisd is offline
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Join Date: Aug 2009
Location: Texas USA
Posts: 49
15 yr Member
yiisd yiisd is offline
Junior Member
 
Join Date: Aug 2009
Location: Texas USA
Posts: 49
15 yr Member
Default Long Term Drug Therapy



I was diagnosed with RSD 8 years ago after a very bad automobile accident with subsequent surgeries for fractures, etc. I have been on Slow Release Morphine (MS Contin) and Immediate Release Morphine for Breakthrough since I was diagnosed. I can tell you this from what my physicians have told me. Morphine (not Vicodan or any synthetic opoid), but Morphine in it's pure pharmaceutical grade is very close to the endorphins that the human body creates. Because of this, there is not as significant a risk of liver/kidney/pancreas, etc. damage with the pharmaceutical Morphine as there is with the laboratory created opoids. I've taken then for 8 years every day and have never had a liver or kidney enzyme that was elevated or out of normal range. However, I don't drink alcohol and realizing that since I am taking very strong narcotics, I am careful as to what OTC meds I take. Recently my pain management physician placed me on Seroquel at bedtime to help me sleep. It has been a life saver. I immediately began to get the first "restful" sleep that I have had since I was diagnosed. Unfortunately, after only 5 months it is not having the great effect that it originally did and I am only sleeping 2 - 3 hours per day. The only time in the 8 years of suffering from RSD that I felt I was "leveling out" was when I was taking the Seroquel and getting at least 8 hours of restful sleep per night. I am 100 % convinced that good sleep is necessary if you are to maintain any normal quality of life. SO my advice is: Don't take the laboratory produced opoids unless you have to and plead with your physician to give you something that will make you get the sleep that your body needs to get the relief from the constant pain one is in during the waking hours. It isn't purfect, but it is the best that my 8 going on 9 years of trial and error has found. Don't Worry about the effects of Pure Pharmaceutical Grade Morphine on your Organs.....but don't take more than prescribed and don't supplement the medications with anything you haven't researched. Morphine has been around for many, many years .... and you don't hear doctors requiring CMP panels every 90 days that you take Morphine. The same can not be said about the laboratory "newer" opoids. GOOD LUCK! WITH RSD YOU NEED IT!
Quote:
Originally Posted by whisperstothesun View Post
Hello.
I'm new to this forum. I've had RSD, etc. for over 18yrs now. I've had to resort to multi high dose opiod therapy long term. I've been following this protocal for a couple of years now. I have cardiac-adrenal insuffiency syndrome and a shot endocrine system from the stress of years of intractable pain which was poorly managed---partly the fault of opiodphobic Docs, and partly because of my own reservations about journeying on this scary road. Finally I had no choice...this or die.
I want to hear from any others who are doing/using similar approach. Pls respond if you/ve done this or are currently using this approach to manage intractable pain.
I'm having a terrible time with my insurance company. The new health care act is threatening my life. If there are other options for me, I welcome stories from fellow RSDers! thanks! love and light to you all...
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